Hello WagSuffolk
I always think it’s worth posting anything that may help, even if it is only one person. The forum is understandably very question based but I do think there is a place for posts such as yours, that simply say it like it is according to your own individual experiences. My own name is quite well known on the forum and I occasionally write what I call an experience piece - the main aim being to record my experience and throw it into the ring not necessarily expecting much from it except it may make someone think a little differently about their circumstances or maybe see things from a different perspective. The link below is one I wrote about obstacles to exercise. It is well known that exercise is important in managing PD and the advice is simple - find something you enjoy . Good advice but not always that easy to do. Having finally got myself sorted, I wrote about it because what I realised was it was not always as straightforward as it sounds. Don’t feel obligated to read it by the way just because I’ve posted the link, that’s just for convenience.
I am currently doing a series of posts on my experience of the process of obtaining the Cue1 and what happened next. I started this because people weren’t saying much other than it worked or it didn’t but I had little idea of really what to expect and if I didn’t that meant others were perhaps wondering too.
In fact your post and Mary1947’s reply have set me wondering about another ‘experience post’ as you both mentioned dbs. I decided not to go ahead with this because the surgery would have been very complex due to my normal pressure hydrocephalus, My consultant and I both felt the risks were too great - although I daresay the surgeons would have relished the challenge as an interesting case study. So I am left with whatever Parkinson’s throws my way… Your comments made me wonder how many others had to make this decision - which is different from not having the surgery by dint of not being a suitable candidate.
I hope you will continue posting as and when the mood takes you. These sorts of posts are I believe, valuable in creating a context for living with Parkinson’s that is not always clear when trying to answer a question.
Tot