Hi
Yes i'm afraid there can be a bit of wait
, my first initial appointment i waited more than 5 months, the last appointment was supposed too be 4 months it turned into 8 months i am lucky in that after Diagnosis i was referred too a PD nurse and have regular appointments every 3 months or so.
Thanks Sea Angler.
Hi Joyola, sea angler is right unfortunately you do have to wait a while for an appointment to see the neurologist. I was diagnosed in the February but had to wait till June to see mine, then once a year follow on appointments from then on.
Hope you get the information you are waiting for, in the meantime if you need to know anything post any questions you have on the forum and someone will have an answer for you. Or there is always the helpline at the top of the page who run a team of advisers who are a mine of information.
All the best Sheffy
The NICE guidelines recommend that "People with suspected Parkinson's should be referred quickly (within 6 weeks) and untreated to a specialist with expertise in the differential diagnosis of the condition."
see http://www.parkinsons.org.uk/content/nice-guideline-parkinsons
On the other hand, if you are to see neurologist with a special interest in movement disorder I suppose it might take longer but it shouldn't. Its a bit of a postcode lottery in reality but siix years ago I was seen within two months
Hi
i seem too remember my gp whilst referring me told me he marked it as urgent, still i waited 5 months.
i'm sure this amongst the nice guidelines in the article could be worded better "The diagnosis of Parkinson's should be reviewed regularly (every 6 to 12 months".
It makes it sound as if there is uncertainty and No continuity within a Diagnosis, Either you have enough symptoms and jumped through all the hoops too be given a Diagnosis or you don't, the last thing you need is unnecessary worry and anxiety.
What are you sposed too think?? i have Parkinsons for 6 or 12 months and then i may be told i dont??, And if that's the case the amount of months or years going through the process you have too think now i have too go through something else too get a answer.
I feel sorry for people told one thing and then another it's not right, soul destroying.
After speaking to my daughter yesterday, who in a local surgery, not at my GP, she said to ring back and ask to go on the cancellation list, I did this, and was offered an appt for early December, which I accepted.
Hi
i had call t'other morning, would i like a cancellation appointment that day with the PD nurse, i declined and an appointment came through the post for the end of the month.
Reading about my neuro i see he is a very busy chap working as a consultant and involved in research into PD among other posts, so i can see why and gratefully accept why it may take some time for an appointment which may not always be on time, I'm happy too spend time with the PD Nurse is just as positive.
i was referred and dx within three months and i know that is unusually quick but my local hospital is in special measures.
Hiya I’m new on here but I’m the same .had a neurologist appointment last Thursday .I have a resting tremor so that’s why my gp referred Me. But after all the tests he did .toe to heel walk which I failed big time holding my arms out straight and counting back from 20 again I failed it my right arm don’t swing closed eyes will he gently pulled on my shoulder and I stumbled back . So he then said I have parkinsome .but because I didn’t have the gait and bad stiffness in my arm he wouldn’t say it is 100% but he has put me on trihexyphenidyl and ordered a brain scan .
Hi @Parky2,
A warm welcome to the forum.
It sounds like you had a really confusing appointment with your neurologist. I definitely think you should wait for the results of your DAT scan for a definitive diagnosis, however, in the meantime, we have a lot of information on the ‘newly diagnosed’ page on our website here, https://www.parkinsons.org.uk/information-and-support/newly-diagnosed-parkinsons.
If you have any questions, feel free to contact our helpline on 0808 800 0303 and one of our trained advisers will be happy to help you.
Best wishes,
Reah
Hi, I have been waiting since January to see someone in Neurology, now suddenly offered appointment in three days time. What can I expect to happen on first appointment? I have a right hand tremor, joined when I very tired or upset by a right leg tremor. I am constantly exausted, forget words, and can’t think quick enough at times in conversations. My left arm doesn’t swing when I walk, just seems glued to my side. I also have very vivid and usually upsetting dreams, even when I drop asleep during daytime. Already have mobility problems due to osteoarthritis.
When I had my first appointment. He asked lots of questions about when I first noticed my symptoms and what other medication I was taking then he asked me to write a sentence and draw a spiral with the hand with the tremor and then the hand without. Then he had me to stand up arms straight out closed my eyes and had me counting back from 20 them walking .I had bloods done and is now awaiting brain scan
He has put me on medication for my tremor but it hasn’t worked my hand shaking as much now as it did so but side affects of medication is not good .hopefully he will try new medication. Good luck in your appointment x
I have just started having real bad disturbing dreams waking up crying and a bag of sweat 
Thank you Parky2, I find it reassuring to have an idea of what to expect. I get nervous enough. May take a list of my symptoms to remind me, as brain is definitely fuzzy 
I have the same thing with dreaming, so vivid. My daughter hears me crying in my sleep. As for sweating, I think my bed transforms into a sauna!
Hi Parky2,
I’m sorry to hear that you’ve been having trouble sleeping recently. Unfortunately, sleep and night time problems are quite common in Parkinson’s. I know I’ve already recommended our website in my previous comment, but do take the time to check out our sleep section as well. I think it would be really helpful for you.
https://www.parkinsons.org.uk/information-and-support/sleep
Best wishes,
Reah
