WE HAVE PARKINSON’S DIEASE!
Parkinson’s is our disease of that there is no denying,
If you contract it (& any one can) don't sit in the corner crying!
I know when you find out your world falls apart,
In a worst case, you may have to make a new start.
Nobody is saying we begrudge you a few tears,
We all understand you are going to have fears!
The Doctors and staff are here to help and listen when you talk
They WILL hear what you are saying, whether you’re affected speech or walk.
They will give you tablets until you rattle,
But with a little time this will help your battle,
YES we all know the road only goes down,
But with our help, the staff will slow us down.
In 2008 I could hardly write,
This gave me an awful fright,
I decided this and my other problems I would beat
I envisioned the Parkinson’s as a Wolf & me he wanted to eat.
How you see your Problem is up to you,
But I will share what I decided to do,
First I picked myself up & decided I must move on!
Then I adopted a motto to build on.
“I hold the wolf by the ears” that is my control of the Parkinson’s
“I will find a way or make one” this is my attitude to getting as well as I can with Parkinson’s
Don’t get me wrong some days I still want to sit and cry,
I see no shame just relief of emotion after my cry.
There will be times you I just want solitude to think,
Some times I’m tempted to lose my problems in drink,
I know drink as a servant, as help to rest, is all well and good,
But let it become the master then you will be its slave, which will do you no good !
Just over 2 years later
In 45 min this in first draft was on paper,
SO I WILL OFFER THE ONLY GIFT I CAN HOPE!
IF YOU FIGHT IT YOU CAN SOFTEN YOUR DOWN SLOPE.
So from one sufferer to another,
I hope like me you can recover,
I offer my best wishes & hope your symptoms are not too bad,
Hope & these words I can offer,
They are all I have!!!
Warlock, words fail me, I have tears in my eyes and a lump in my throat.
May your God be with you.
PD is not a "disease"
You do not ""contract" it with ease
From it you will not "recover"
Just pray to be able to "suffer"
The pain and the indignity
With some equanimity
AnneBernadette my dear Mother RIP, always used to say, the good Lord wont give you anything you cannot bare. I say I wish He wouldn't give us so much.
My own dear boy was blessed
With the IQ of a genius
He suffered the humiliation
Of schoolboy degridation
He rose to great heights
Then was lost from my sights
To answer what has been said,
Radar 47 may I thank you for your kind words! I was told I had early onset two and a half years ago, the poem is my way of telling how I coped.
Please excuse me not putting ladies first, but ann bernadette,on the matter of contracting PD in Canada they have found a bacteria with a high commonality in the brain tissue of PD sufferers.
Also if you look it up Parkinson's IS A DIEASE! it is a degenerative disorder of the central nervous system. It results from the death of dopamine-containing cells in the substantia nigra, a region of the midbrain; the cause of cell-death is unknown for certain. But I don't think that flows quite as smoothly.
Still thanks for the interest, maybe I will post another poem when I have time
hello Warlock, I thought your poem was brilliant. My poor little effort was in no way intended to "correct" you. I think that I had in mind the decision of The Parkinsons Disease Society to change it's name to Parkinson's UK. I am sorry if I offended you. Thank you for the information. I do hope you do post another poem
Hi Ann Bernadette,
my apologies for for being over defensive of my first attempt on the forum. Please accept the following as a peace offering :-
An apology offered I will willingly accept,
From a LADY called Ann Bernadette,
In return I offer this token,
As offense like poison is dangerous when taken,
I hope that from a bumpy beginning,
A friendship can grow that will be winning,
Pride on my part has led to us going off at the bend,
So I hope this will any bad feeling end.
I should like to be the friend
Of a Gentleman who can send
A reply with such speed
Recognising my need
Things can give me a fright
Especially at night
I can read, see and hear
Things that are simply not there
Do you think it might be time
We stopped saying sorry in rhyme?
And know that from the start
Kind thoughts were in the heart
Now I have to prepare
For washing machine repair
I hope he comes early
My clothes are quite dirty
And please let him wait
Whilst I unlock the gate
My O/H will not hear
He plays his new guitar
Warlock - this is my clumsy way of saying thank you. There is & never was any bad feeling on my part. Just annoyance with myself. Crumbs, remorse is a bitter a pill as offence!
Hi Ann Bernadette,
Glad all is well! Hope you have better luck than we did with our machine. Hospital appointment 10-15 about 3/4 of an hour drive.
The engineer, a very nice man
Did all that anybody can
But my machine of 6 days
Has to retrace it's ways
Back to the factory
To be made more satisfactory
In the meantime, I am assured
That another will be procured
And hopefully that will mean
That my clothes will be clean
I hope it won't take long
I fear I'm beginning to pong
Forgot about my dream,
Until the other day,
Parky thought me rid of it,
But it hasnt gone away,
Parky thought hed flattened it,
But I think its here to stay,
Parky thought Id lost all hope,
But he wont have his way
I was talking to the mother,
Of several naughty boys,
Youll know just where she lives,
You can tell from all the noise,
She said to me just give me,
The right amount of time,
To get them through their school days,
Please Parky give me time.
Well I know Parky all to clear,
Yes i know Parky well,
And if he Grants her that one wish,
Hell make her go through hell,
So this is where my dream comes in,
The one that Id forgotten,
Where Parky shows his hand too soon,
And ends up feeling rotten.
I make a play as if the day,
Is going well for me,
I strut around as if ive found,
Some doughnuts for my tea,
And Parky sees my little show,
And thunders to my side,
Proceeding to the very core,
Of what i call my mind.
He sets about me hell for leather,
But if we die we die together,
I put on such a show for him,
He knows for sure its sink or swim,
He used his cruellest arsenal,
He takes away my very will,
Im holding to my life still,
Its hard but I must win.
compost - can't think of the right words so
Moved this excellent poem into this thread.
13yrs after being diagnosed and still working full time.
Attached below is a poem that I have written, to give a
litttle glimpse into my life with Parkinson's,
Enjoy it (I hope) and SMILE!
(Living With Parkinson’s Disease)
If you wake up each morning feeling quite low or quite sad,
I’d like you to think that life’s not quite that bad –
Because the first thing I think of – the question that begs –
Is whether my brain will talk to my legs.
And if it appears that different languages they are talking,
I know that for sure that I’ll have difficulty walking.
But I never stop and and wonder - ‘Why me?’
I’ve just come to accept that’s the way things will be.
So before you complain – just think how lucky you are,
And how you take things for granted – like driving a car,
Then instead of a frown wear a smile on your face –
You’ll find that it might even brighten the place!
Do this for yourself, for your friends far and near,
For your family and everyone else you hold most dear.
And if after all you still find that you really can’t cope,
Then the thing to remember is that there is always some hope.
For this hope allows us our troubles to share,
And a positive attitude helps the people who care.