Can anyone tell me where I am supposed to go for help?
My meds werent having much effect after 3/4 months so phoned and left message for pd nurse ref unpleasant symptons experiencing , (head tremor, cramps etc) and should I increase meds. PDn eventually phoned me a week later and said she would speak to neuro ... That was on 1 August. I emailed again last week to tentatively ask if she had any luck but have still not heard anything .
in the meantime whilst waiting for advice I upped my meds by /mg of my own accord but after 5 days went back down and then a further reduction of 2 mg as still experiencing unpleasant symptons.
Should I be phoning my GP or waiting for my next neuro appt (every 9 mths) - I know the pd nurses are very busy, but what, where, who are we supposed to go to?..... I feel a bit of a nuisance, but there just doesn't seem anyone you can turn to