13yrs after being diagnosed and still working full time.
Attached below is a poem that I have written, to give a
litttle glimpse into my life with Parkinson's,
Enjoy it (I hope) and SMILE!
(Living With Parkinson’s Disease)
If you wake up each morning feeling quite low or quite sad,
I’d like you to think that life’s not quite that bad –
Because the first thing I think of – the question that begs –
Is whether my brain will talk to my legs.
And if it appears that different languages they are talking,
I know that for sure that I’ll have difficulty walking.
But I never stop and and wonder - ‘Why me?’
I’ve just come to accept that’s the way things will be.
So before you complain – just think how lucky you are,
And how you take things for granted – like driving a car,
Then instead of a frown wear a smile on your face –
You’ll find that it might even brighten the place!
Do this for yourself, for your friends far and near,
For your family and everyone else you hold most dear.
And if after all you still find that you really can’t cope,
Then the thing to remember is that there is always some hope.
For this hope allows us our troubles to share,
And a positive attitude helps the people who care.
Great poem and well done to you. It is a refreshing change to hear the positive side of things. PB x
What a great poem Pasty. I love it, shows great humour and good spirits, sadly lacking on this site at times.
13 years and still working, impressive and that is my aim. I am 52 and have every intention of working till my retirement
Thank you for showing a positive and funny side to PD
Thanks for that, Pasty. We need more like it.
Brilliant poem pasty (are you Cornish?) I am always trying to think of ways to cheer people up on this forum. Worrying aint gonna change anything is it?
Thanks Pasty for that! It is a wonderful poem!
And 13 years and still working? That is remarkable!
What a gorgeous poem.
I like to think that I will still be working in 13 years.
I agree think this excellent poem should be moved into the creative corner so we don't lose it.
is there more to come pasty?
I`ve just joined the forum.
poem is brill.
i was diagnosed 7 years ago & finally had to up full time work this summer.
Still struggling to get a structure to my days.
I have lots of time on my own & my symptoms seem to be worsening.
My sense of humour kept me going until recently.
Now on anti depressants.
Pasty - keep working as long as you can.
Just looked at wot I`ve written - how miserable !!!
Plus points of my new circs -
time to enjoy nice weather.
just started a correspondence course - A level in politics .
Going to Las Vegas in November.
i`ve cheered myself up now !!!!!!
thankyou all for your kind comments.
One of the reasons that I'm so keen on portraying
the fact that I'm still working after 13yrs is to give
people hope. I was 32yrs old when I was diagnosed, but
my employer's have been brilliant and the fact that I have
always been open and honest with them has meant that
I have been available to access the full range of support
that is available.
Access to work are fantastic and my Parkinson's nurse is
I don't like my nickname pasty but the forum modulator
said that my original was to much like my real name and
I just happened to be eating a pasty at the time!
Lucky it was`nt spaghetti bolognaise !!!!
Diagnosed at 32, I was 50 & i thought that was young.
You go girl !!
You are an inspiration to us all.
I think I`m going to enjoy the forum.
Sorry to correct you, and Im not being nasty,
but the nickname's not Patsy - it's Pasty,
and I'm not being coy,
when I say that I'm really a boy!!
Welcome Pasty and Billybilly,
Love the poem! Can we all join you in Vegas? Best wishes, Lin2
Whoops sorry Pasty.
Patsty, hi did enjoy reading your poem,I know what you mean
by a little hope, I found mine in a small paper clip when I
went out I was at a open mic night and as I stood to say my poems
I held this paper clip.and as far as I can say by hands were busy
my shakes held back,oh it was a good feeling,so never give up on hope,best wishes to all,
Hi its me again sorry about the t to many, I hit wrong key .take care Patsy,
keep eating those pasties, they obviously suit you. great poem.
why worry ?
i'll tell you why, because i have parkinsons,because i have to take tablets i dont want to take,because this dam ailment is ruining my life,because i have two young daughters that i cant play with like i should be able to. before this started i was the life and soul of the party,we have been out today in a room full of people and all i wanted to do was go and hide in a corner not to be noticed i hate my miserable life and its not going to inprove any time soon in fact it looks like the onley way is down,down ,down in to the murky depths of deppresion,neve to know the joys of laughter again or knowing that you could walk in to a room full of strangers and leave them with a smile on there faces when you left dont get me wrong im happy for pasty and all others like her who can cope with it but there are some who cant
I tell you why I say not to worry,
it's because if I did - I know
the bottomless pit that I would fall
into - and believe me - I've been on the
edge of the pit many a time.
But there are some things that I can't
change and one of those things is the fact
that I've got Parkinson's.
I've got two children and it's for
their sake mainly that I keep myself going.
I know it's difficult but if you keep
trying the rewards are worthwhile.
By the way - I'm a