Does anyone use propanolol for their tremor? What dosage and does it work?
i have a resting tremor and a postural tremor , when i went to see my gp a few years ago when i first noticed a tremor she gave me propanolol , did not do much for me i am afraid , i take Madopar now tremor has calmed down quite a bit i only really notice the tremor when my meds are wearing off
Thanks, Shelly- any side effects from that?
Not from the Madopar no but i was originally given sinemet plus had to give up on those last week i had been on them since November and suffered nausea and vomiting after trying every anti sickness pill going it was decided i should try Madopar so far so good but im only on half dose at moment we will see what happens when i am back on 125mg
I have just read your profile , i can empathise with you i found it quite a shock being told i had parkinsons and it took me a while to finally accept it and come to terms with it i now take the view that i cant change it so i am not going to worry about it and i take life as it comes ,i am more or less in the same situation as you both myself and my mother have parkinsons
can i just say, hughenewbie i love your picture, so evocative and melancholic.
I saw my PD nurse for the first time on Friday, Now I am a bit concerned, She said although I had a lot of PD symptoms she wasn`t sure if I had straight forward PD, She said a red flag to her was that I suffer a lot from urinary problems for example urgency and sometimes incontinence, She said that this only happens in advanced PD, But there are diseases that are sort of cousins of PD, But these are not good to have. She said that the problems I have with my bladder are common in one of these similar conditions, But these conditions cause a rapid deterioration and there is no real way of telling them apart. I had a look at the condition and it is called Multiple System Atrophy. Bladder problems are very common with this and because it is so similar to PD it is very hard to tell the difference. MSA is a terminal condition and patients only survive between 9 and 12 years from time of diagnosis. Has anyone else been told that they may have this condition, I feel very worried about my future now!
if that is what she says then your nurse is a bit wrong. urinary problems can develop quite early on with pd, as i can personally attest. it can be very difficult to tell the difference between pd and msa though it tends to become clearer with time. there are two types of msa, one looks more like alzheimers the other like pd. the pd-look a like has better life expectancy.
the things doctors use to make a diagnosis are listed here if you want to know.
http://emedicine.medscape.com/article/1154583-differential
much of the research into alzheimers and pd is also relevant to msa.
having one msa symptom is a long way from a diagnosis.
ps you have your main symptom as a tremor and its on one side, both of these are signs that it is NOT msa.
Hi Turnip,
Thanks for the explanation, Maybe I misunderstood her and yes I to thought that bladder problems were common with PD, I think when you are bombarded with information it can get confusing. I was diagnosed by a neurologist who specialises in PD, It just threw me when she said that bladder problems were not common in early PD, But then I have had it for nearly two years so maybe it is a natural progression, You say you have problems in that department as well?
Hi Candy,
The Xmas period before was diagnosed in the May - right sided tremors. lack of arm swing and fine motor skills - not to mention that a clue'd up neuro can quite often tell by just looking at you , I had frantic urgency and consequent lapses. In fact, for several years before that I had more than one bladder test where they fill you to busting with water and, guess what,not a single drop escaped. An yet once or twice in the a year in the years before I would have an out of the blue total loss of control.
yes, post pee dribble. one of the inummerable little jokes of pd. black trousers are de rigour (no pun intended) especially with the red pee of levadopa.
Bladder, and especially, bowel control problems are an indication of msa. seeminglly though only 9% present with it so its not a very good indicator at all. btw people with msa-p (parkinsons type) can live up to 19 years.