Hi all, It's with a sense of longevity that I write this post, as my husband is only 38 and was last year diagnosed with Parkinsons - and I expect these type of forums may be in my life for the rest of my life (wherever technology takes us!).
We are moving between utter terror for the future, and complacency, as he isn't badly affected as yet.
We have a three year old, and sometimes I feel sad that she will never really know him as he is now.
We have been lulled into a false sense of security with him starting Azilect, and we are delaying the inevitability of his needing to start Sinamet or the like. His tremor is getting worse already (he didn't have one at diagnosis four months ago), and he has been exercising madly to try and delay the progression but struggling even to get up in the mornings.
The biggest problem for me is his utter lack of motivation. He's actually been like this for years and now I know why. It has always frustrated me immensely how long it takes him to do things, how much he doesn't want to do things - I've always been so motivated. We are so opposite in that way, and I'm scared about how I will cope.
His diagnosis has come at a time when a lot of other things are going on - life has suddenly become very emotionally hard for a number of reasons. Additionally, I myself lost my legs 12 years ago to meningoccocal - so my capacity to care for him will be limited, both physically and emotionally. I guess I'm mainly worried about how I will cope and feel very guilty to admit these feelings to him.