Hi all, Not been on here for some time now. My husband is 11 yrs diagnosed and been on lots of meds over the years, he seemed to do ok dealing with most things kept driving and going on holidays etc.
After a very stressful 2 yrs, my husband started to have hallucinations but would accept it was his meds that were the cause. Then after going on a 2nd additional patch rivastigmine 9.5 (apparently to help with the hallucinations) he eventually had more vivid visions and became very delusional believing all he could see.
He had a couple of bad falls about a month ago and refused to be checked out. Something has changed him dramatically he has deteriorated so much since these incidents.
He can’t stand up without trying over and over again, he can’t walk across the room without losing his balance, he can’t bend to reach something without falling, he doesn’t seem to have much of a appetite recently.
Memory loss, forgetfulness, and asking the same things over and over again.
I noticed for some time now the urgency for when he needs a pee its got to be immediate, he pees everywhere except into the actual toilet bowl.
He has a private neurologist who is a long drive away, and since giving up driving he can’t get to see him easily. He has had this same Neurologist who diagnosed him 11 years ago.
I contacted his Neuro by email to tell him how my OH was deteriorating, he said that he may have a UTI or other infection and that he needed a urine test, Chest exam, and a ECG.
When his GP examined him, his blood pressure was very low so he was taken off his BP meds, on the urine dipstick test showed Nitrates in his urine, no blood or protein. the GP said they were not sure if the nitrates were due to his meds, so the test was sent off for full test results.
In the meantime, his Neuro had said that he is to be put on anti-biotics straight away if there was any suspicion in the urine dipstick test.
My OH GP said this is not right he shouldn’t be going on ABs in case there’s no infection and that we should wait for results, but his Neuro insisted that he started them without delay. his GP said there was no point and didn’t make any sense.
His Neuro is going to up his rivastigmine patch to 13mg and introduce a new med for paranoia.
Apologies for the long-winded case, I’m so worried and dont know what to do, I am beginning to wonder if this is the beginning of the end, I’m even wondering if my OH has had a stroke but his neuro hasn’t mentioned anything like that.
Can PD symptoms change so quickly and dramatically, his Neuro said when he last saw my husband 3 months ago he was happy with him and he needs to rule out infection because he shouldn’t have changed with his symptoms so quickly.
I am out of my mind, and my husband is just all over the place don’t know where to go from here.
Any opinions or advice will be more than welcome thank you all xxx