Many of you know probably know that www.23andMe.com offers completely free of charge genetic analyses for PwP (they sell their services for all others).
I have used them and really liked their services. It was both highly professional and gave me a practical insight that I'm using in my "fight" against PD. It was also totally free of charge for PwP and extremelly simple & practical to use (you register on-line; they send you a test tube free of charge pack by international UPS; you put some of your saliva in the test tube and send back to them by prepaid/free of charge international UPS; a couple of weeks later you see your results on-line showing your genetic propensity of having certain diseases compared with the normal population; they also show you some cute info about your likely traits and ancestry).
In my case, I realised through their results that I seem to have a higher-than-average genetic propensity for a certain number of diseases that all seem to involve some sort of inflammation in the gastro-intestinal tract. As I've also seen lots of research pointing to links between inflammation and PD, I have been focusing on that a lot and have now learned various ways to control inflammation and to control at least one mechanism between inflammation and PD. I don't know if this will ultimately yield significant benefits for my PD, but hey, trying to at least control one possible cause is a lot better than just managing symptoms - which is all that neuros can do today.
Now, the US FDA (Federal Drugs Adminstration) is throwing needless bureaucracy at 23andMe and they will have to stop providing genetic-based reports on how likely you are to have certain diseases (at least until they spend millions to meet all the ridiculous administrative hurdles that the FDA will feel like throwing at them). This is really a shame as it prevents people from having access to potentially invaluable information for free.
From my side, I signed a petition to the white house to ask them to tell the FDA to stop this nonsense (https://petitions.whitehouse.gov/petition/overrule-fdas-decision-bar-23andme-selling-their-potentially-life-saving-diagnostic-kits/96BRCYNB) and sent an e-mail to the FDA commissioner that is leading this action ([email protected]) explaining how important 23andMe can be for PwP and asking her to stop what she's doing. I'm not sure if her e-mail address above is correct or if it will ever get to her.
These people at 23andMe are doing a lot for PwP (for free) - I believe they deserve our support!
Warm regards to all,