welcome to the forum, you have come to the right place to get all the support you need. I am sure the Parkinson’s community will soon respond with offers of help and advice. However in the meantime do contact our helpline on 0808 800 0303 or email [email protected] for information and support, they can also put you in touch with a local adviser if required to help you both.
Hello PerryF
Just wanted to say welcome and you and your partner will get through these early days when most people go through a whole range of emotions and don’t know whether they are on their head or their heels. You are quite right in that there is a lot to learn but you don’t have to find out everything at once, or you will most likely be heading for information overload and generating a very black picture of your future together. Give yourself time to get used to the diagnosis, concentrate on what you need to know now and generally let things settle a bit once decisions have been made regarding management of his Parkinson’s. I am not going to lie to you, it is life changing and not something you would wish on anyone but if you can keep the positivity you have shown in your post, you’re half way there. You may have to do things a little differently but you shouldn’t give up on your dreams and plans. My best wishes to you both.
Hi Perry
I was diagnosed 8 years ago aged 42.
Went to doctors with what I thought was as trapped nerve, he confirmed the worst straight away.
Life at times can just be a slower pace.
Send me a message if I can be of any help.
Stay positive
Tom
Hi Perry. Welcome to the forum. I’m a newbie here as well but you will find lots of info and advice along with a lot of love and kindness. My husband is also 43 and recently diagnosed. I know exactly how you must be feeling. We are trying to keep positive and be grateful that we could have gotten worse news. Try to stay positive and keep living your life. Hubby is very positive and has started exercising to lose some weight and he is eating healthier. There are still days where its all we think about and looking to the future is scary but I hope you can both find acceptance with the diagnoses and enjoy your lives together. Sending love xx
I was diagnosed two years ago age 55 so I’m still new to it all.
I can however give you some pointers that work for me.
1 It’s not a death sentence. Once you get your meds right you can lead a semi normal life.
2 Everyone goes through the emotions you are going through at the moment. Take some time out and be kind to yourself. Dark chocolate helps !
3 Exercise. Get at fit as you are able to be. It will make a difference both mentally and physically.
4 Join a young Parkinson’s group or Working age group. These people are inspirational and will provide moral, practical and emotional support. Many also have ideas about treatments and therapies that work for them.- Evaluate and try them all.
5 Everybody is different and so is the rate of progression. In many ways you can influence this by taking the steps listed above.
6 Fight. Develop a combative mindset. PD is your enemy. Fight Fight Fight !
7 Establish a good relationship with you specialist. They have a host of pills and potions to combat these dreadful symptoms.
Thing will change slowly except it enjoy your selves don’t expect the worst . I was diagnosed 2 years ago. Things do change I had just started running when diagnosed aged 56 I except the changes find a way round it . Scary a bit . It’s different for everyone. I won’t be beaten easily neither will you. A supportive family.friends and employers will help just wanted to reply remember the shock my self
check on the bnf/nice and drugs.com for the interactions of drugs.
have the confidence to know you are doing the right thing
question. At our appointments, I always feel like I am I ingeregating the doc, but need to to be able to answer hubby’s questions after the appointment.
