Hello
I wanted to ask if anybody is experiencing abdominal discomfort after they take the second or third dose of levodopa lasting anywhere from 1 hour to several?
If so how do you deal with it?
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Me Me Me . Let me tell you about mine …… Please read your leaflet that comes with your medication. You might find that your medication can actually ‘cause’ some of these problems. I take Sinemet and it says on the leaflet it can cause abdominal pain, camptocormia and dystonia, drooping eyelid, dry mouth, sore mouth, stiff muscles and muscle cramp also, feeling anxious. I have all of these an I am still prescribed it. I will endeavour to discuss this with my Neurologist if I can get an appointment - that’s another story hmmmmm. Failed miserably last appointment 6 months ago!!!
I have camptocormia - which is according to the leaflet Parkinson related whereby I stoop. At first I just bent a little now………. I am almost at a 45 deg angle - bending forward along with this I have stomach cramps which have progressed up from my groin and is now (mainly on my left) around my rib cage. A neurologist wouldn’t accept the camptocormia diagnosis and put it down to disc problems …. 6 years later (my file was lost for this time at the hospital!!!) I was once more referred to the neurology dept. by new doctor at local GP Practice was properly diagnosed as Captocormia.
Now it is too late - I am led to believe - for anything to be done. The stoop gets worse by the week along with the cramping. I am fine sitting down or laying down BUT trying to stand straight is now getting almost impossible both physically and due to cramping pain in stomach etc.
Don’t know if this is anything like you have - if there are some similarities fight, fight, fight for some help - botox would have helped me but I have been told the amount I would now need would kill me - or so I am told.
I go to a PD Gym class and we also have talk time - I was asked about my stoop by one of the group so I told the group and they too said you have to fight these days for help. Please keep my informed if it turns out you to have Captocormia or something similar. Look after yourself and take care.
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