I was diagnosed officially in 2019 (aged 72) but probably had symptoms for much longer. I was giving a talk and found that I couldn’t hold my notes steady, It was time to face up to the fact that I might have PD. I was a G.P. in Nottingham for many years and then went on to chair various NHS organisations , finally ending up chairing a charity for the homeless. I realised fairly soon that despite my medical training I had very little knowledge about how PD actually affects people on a daily basis. I’ve learnt a lot since. I joined our local research interest group (PEMRIG) and have found this a great source of help. It gives me a sense of purpose and dare I say it control over a condition. I’ve been married for 52 years and have 2 sons and 5 grandchildren - all firmly glued to their electronic games consoles! Now to the 'cello. I’ve found that I’m not able to hold the 'cello bow for longer than a few minutes, so effectively I’ve had to stop playing in my local orchestra and string group. Has anyone come across this problem? Any comments gratefully received.
Hi and welcome to our forum, @DocPete. Our members are a very friendly and supportive bunch and many will be able to relate to a situation like yours, where a beloved activity or hobby has become challenging.
You’ve had such an active and inspirational life and it must be terribly hard to now be faced with a diagnosis like Parkinson’s, not knowing what the future holds. It does sound as if you’re doing an amazing job at keeping your hand in, though. Totally brilliant! I wonder if any of those grandchildren could help you to create some digital music and get a whole new lease on your musical life. You just never know.
I’m really looking forward to hearing more from you in the forum. If you have any concerns that you need information or support with, please do ring our Helpline on 0808 800 0303.
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This may be an off the wall suggestion but they may be ab,e to help. There is a charity called Remap who will design bespoke one off pieces of equipment. Maybe they can come up with something that will help you keep hold of your bow and still be able to play. A bit of a long shot but you never know. They check the market first to make sure there is nothing commercially available. If you do follow this up I would be most interested to hear how you got on.
Thanks very much for your kind welcome. I’m looking forward to contributing and being part of the community.
Thanks Tot. I’m very grateful for your time and thoughtful suggestion. If anything comes of it I’ll be sure to let you know.