Hi, Steve. Thank you so much for sharing your journey with us. It’s great that you’re already finding ways to manage things and stay positive, especially with playing music - it’s awesome to hear that it’s still a part of your life!
It’s totally normal to feel a little daunted at the beginning, but you’re definitely not alone. And it’s great that you’ve got a supportive Parkinson’s nurse. If you ever feel like you need further support or advice, you can call our free, confidential helpline for support and advice: 0808 800 0303 (available 9am and 6pm Monday to Friday, and 10am and 1pm on Saturdays)
You’ve found a great place here to meet people and share experiences. Don’t hesitate to reach out anytime you need to chat, vent, or share a laugh. We’re all in this together
I am 57 years old, and was officially diagnosed in January 2025, albeit my “symptoms” probably started in Mid 2022.
I used to play a bit of Guitar, myself, but have had to stop because my Left pinky finger developed a growth that meant my playing time was limited to 5-10 minutes. Hardly worth it.
I have been learning Japanese for almost 2.5 years now, which is difficult, but entertaining at the same time.
The easiest way to get going until you are more familiar with it is to click on reply. So if you click on reply to this message you should get a text box and you can type whatever you want to know and you can take it from there. Take heart, there are quite a few of us who don’t find the forum particularly easy to navigate but there are some help videos and becoming more familiar with it, you will find you can do what you want or need to do. Give it a try - click on return and you should be able to ask your query.
Tot
