About the Introductions and Personal Stories Category

Hi evanssophiya welcome to the forum I am 9th member of my family with pd so have gained a lot of info firstly why are you ashamed you are still the same person but with an illness you could do nothing about my late dad was ashamed and I vowed it would, nt do that to me and it won’t please feel free to contact me anytime I will help if I can you will find me and my good friends on insomnia thread and you will find some good words of comfort on parkinsons is poetry thread look forward to making a new friend stay positive

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Hi @evanssophiya
Im so sorry that you are suffering in this way.
I’m most definitely not religious so with that in mind I ask you to consider.
Live in the moment… We do not own the past just as we do not own the future.
We own only a rag of time, this moment we call the present… It is not necessary to expand the present to imagine the future frenzy of our lives… Time is like a meal----each mouthful separate and fabulous.

I hope I have not come across too (deep) but hopefully inspire you to look from another perspective.
Oh and if you are religious, then fine but I’m afraid it’s not for me I’m just a fellow human.
Hang in there friend
Tommy :pill: :pill: :pill:

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Thank you so much for all of your words of support! I am learning to be positive and to accept the present as it is.
Pete, thank you for inviting. As I will be ready, I write you on insomnia thread

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Hi feel free to get in touch with me anytime you want to I see you met another insomnia friend in Tommy look forward to hearing from you

My name is Diana and I am 50 years old. I have not being yet diagnosed with PD but I think that I have it. Lately, I am feeling confused, doing involuntary movements with my arms, feeling afraid of driving my car, changing and I have lost my memory. Sometimes, when I talk I say the word incorrectly, and the other day I was reading my doctor’s lab prescription and I could not recognize what I was reading. I have pain and weakness in my articulations and muscles, and I feel my body rigid early in the morning. I will tell my doctor about all this symptoms that are new to me. The other day I had a tremor that last like a minute and I did not know what it was until I read about it. My uncle suffered from parkinson.

Hi Diana,

Welcome to the community.
We’re sorry to hear that you have been experiencing these symptoms. If you think you may have Parkinson’s it is best to see your doctor immediately, as you are planning to do.
There is also some useful advice on our website here for anyone who is worried they may have Parkinson’s, and our free helpline is here to answer any questions you might have on 0808 800 0303.
We hope this is helpful for you.

Best wishes,
Moderation Team

Hi Everyone, Feel like a bit of a fraud joining as it is my dad who has parkinsons. My dad doesn’t live near me,I try to see him about every 2 months but lately I can see more deterioration when I see him and I am finding it so hard not to be so angry at parkinsons.

Hi @Thilinie, :wave:

Welcome to the Parkinson’s UK forum.

You are far from a fraud, this forum is for anyone affected by Parkinson’s and that includes family of those with the condition. I’m really sorry to hear that your dad’s health has deteriorated and I can understand why this has made you angry. However, I want to reassure you that you are not alone and we have a lot of members who know exactly what you’re going through and I’m sure they’ll offer you some support as well. In the meantime, you may find tips from other family members on how best to manage the changes you see in someone with Parkinson’s, you can find this information via our online magazine here - https://www.parkinsons.org.uk/information-and-support/your-magazine/tips/tips-family-friends-and-carers.

Although you are not your dad’s official carer (or at least you haven’t stated this in your comment), you may find the practical help and advice on issues that may affect you in our carers guide, helpful. You can download this here - https://www.parkinsons.org.uk/sites/default/files/2018-09/B071%20The%20carer’s%20guide%20WEB.pdf.

Finally, we have a team of friendly advisers via our confidential and free helpline who would be happy to offer you more support for you and your dad.

Best wishes,
Forum Community Manager