This forum is for those who are in the process of finding out whether they have Parkinson’s, or dealing with a recent diagnosis. Here, you can share experiences, questions and feelings with others who have been in a similar situation.
Please remember that though posts on this site can be very helpful, they are the opinions of individuals, and are not the views, policy or advice of Parkinson’s UK. If you would like expert advice, contact your specialist, GP or Parkinson’s nurse.
Hi, I’m 56 years old and have been working for 40 years in mostly physical work as is my current job.
I think about a year or so ago i noticed a slight tremor whilst resting after work,before that for several years having back,neck and hip pain.
Around 4 months ago i was rushed into hospital with a gallbladder infection and stone, i was in a bit of a state, awaiting the op still with a drain bag fitted.
After that i started to have quite significant tremors in my left hand and arm, walking slowed right down( had been shuffling more for a while).
I went to the doctor who suspected parkinson’s. Over the next few weeks the tremors rapidly progressed and my neck/head began to tremor my mid section and started to go slightly to my right arm.
My Doctor prescribed a low dose of sinemet and pushed for a quicker neuro referral as i was in a mess and needed a stick as i was also dizzy.
I saw the neurologist who said i had probable idiopathic parkinsons and prescribed sinemet plus, he also wants to check my neck and spine as i do have slight damage, my doctor also had arranged a brain MRI for the neurologist to see which was ok.
I want to go back to work after the gallbladder op but in all honesty i dont think it will work out but I’ll do my very best.
I haven’t a clue what happens next, ive been referred to the parkinson’s nurses and now waiting. I go for a walk most days, the sinemet plus has improved my situation but i do get very tired days,sleep isn’t great either…my wife is great,we have two kids and 4 grandsons.
Hi Kevvy2227, welcome to the forum and thank you for your first post. We’re really sorry to hear about what you’ve been experiencing. We understand how worrying a time this must be and we are here to support you.
We have information on our website about Parkinson’s, what to do when you are diagnosed, and what support is available to you. You can find it here: Information and support | Parkinson's UK
If you need to speak to someone, we have a free, confidential helpline on 0808 800 0303. You can speak to our specialists, ask any questions and receive advice and support as you navigate this.
We’re glad the sinemet has improved your situation and it’s great you’re going for walks. It’s really important to stay active.
Please take care and let us know if there is anything we can do.
Hi, when i saw the neurologist he asked if there was any history of parkinson’s within my family, i replied no.
However today i found out that my uncle who passed earlier this year,amongst other things had parkinsons.
Can i ask if this will change things regarding my probable idiopathic parkinson’s diagnosis?
Much thanks
Hi @Kevvy2227 - thank you for reaching out to the group.
We are so sorry to hear about the loss of your uncle. We would encourage you to speak with your GP or Parkinson’s for advice. You can also contact our helpline, it is available to anyone affected by Parkinson’s. Our trained advisers can offer support and advice, and you can ask to speak to one of our Parkinson’s nurses if you need support: 0808 800 0303.
