Hi I have had Parky pal with me for nearly 8 yrs now, yes the cold puts me into overdrive I find I cannot warm up after being outside. I have since purchased thermal underwear and keep a thermal hat on, this helps. A soak in the bath is the only way I can get warm guess a hot shower would work too. Try a muscle soak like radox or similiar the cold puts extra stress on the body try not to worry most of us do not function well in the cold once warm back to "normal" tremor always worse when body under pressure tired stressed but I find the cold is by far the most difficult to manage
hi BB, hope you don't mind but was wondering how are things with your hubby. i know it's only been a short while but can emphasise with you both and if any way can help via forum just let me know.
Hi BB and yes i was the same with regards to consultants appointments. get in there, get what i need and carry on. didn't take my wife as start asking questions and the more you know the more you have to face it. I found with the consultant i kept it a more formal type appointment. it was the PD nurse who set the ball rolling for me. from a male view any reason not to discuss problems is the first thing to grab hold of and use. I would be same if it was my father and only deal with it if he did.
My consultant recommended the PD Nurse to me and first i thought i don't need to see her i can manage, let her help those worse. I see my PD Nurse on Monday so if you want i can ask her about your situation or you could try their online database thingy as i'm sure they will have dealt with this before.
hope this is of some help BB and hope you get to consultants as well as sounds like you don't get a break from it some days
It's tough dealing with the elephant in the room scenario. I know we have chatted in the past about the same issue.
I chose to just get on with it , didn't mention it for 3 yrs and people left me alone and respected my way of dealing with the diagnosis basically what I call the denial stage where I changed from woman to ostrich.
Anyway, for the past 5 years have wanted others to acknowledge what I am feeling and at times need a hug and a shoulder to cry on. but am faced this time with their denial as my symptoms are more obvious and I guess they cannot face what is happening to me. So me woman them ostriches ! everywhere I go they are there with their long legs and heads buried in the sand.!
What helped me is acknowledging other people involved in my life would prefer to pretend its not happening and look for support outside the family . I had counselling for the anger and frustration I felt at my new ostrich family and friends.
At the end of the sessions I was becoming more self reliant again, spoke to other people with a chronic illness got that hug I needed and had a good cry as well. I am obsessed with the song , human and the lyrics help me. I have a few bad days but growing to accept the cute ostriches in my life, as just maybe like I did after that stage of denial and became me again, they .
Sending you a cyber hug xx
think i have to start to deal with peoples preference to not mentioning it TH especially when the shaking is bad. like yourself easy to choose not to mention it and save all the hassle I have been lucky that my family own and in laws have been open and accepting more than i did originally but friends and colleagues can be yeah yeah nice to see you but got to dash and hate to catch that poor you look in their eyes.
i think BB TH is right that over time they will accept it especially as there is some one there who won't just sweep under carpet.
is it The Kilers - Human song or did you say Rag and Bone man? I love playing music and the feeling i get from my anthem type songs. not sure which song i would choose singly lyrics wise as find so many to sing for slightest mood change. love indie music especially anthem type.
Sorry BB taking over your thread, my apologies but along with the humour music really just give me that push.
My best wishes and do try PD Nurse as your husband knows he has just has to deal with it.
Hi BB and glad to hear it. the wheels are in motion as things like that tend not to stay stum for long. When i revealed i had PD 2 weeks later I bumped into some one I used to work with and they looked shocked to see me walking dog. apparently i was wheel chair bound just not the same. keep us up to date
Yeah ! so pleased one down all hopefully all the ostriches will follow. support is there and if not go looking for it good luck xx