Alcohol and Parkinson’s


#1

I would love to know what everybodys attitudes are towards alcohol. Personally I love a few beers but not had a drink for nearly 3 months. I was newly diagnosed a month ago but the months leading up to my diagnosis I had some really bad experiences whilst drinking alcohol or I should say after drinking it. It was mainly that I simply could not sleep at all leading me to be awake for most of the night. The last time I did have a drink I felt i was having an outer body experience, could hardly walk and just felt generally bad. In affect it was making what I now know to be my Parkinson’s symptoms 10 times worse. I haven’t touched alcohol since. A friend of a friend who has Parkinson’s did say red wine is our medicine!

would love to know if fellow-sufferers have had adverse effects to alcohol and what their general opinon is towards drinking with Parkinson’s


#2

Hi Wildrover

In a way I was glad to read your post - it makes me realise I’m not the only one! I had put the symptoms of sleeplessness and feeling bad down to mixing alcohol with medications ( am on Sinemet and nefopam ).

Like you I have virtually cut out alcohol but I do miss the occasional glass ( or 2!) of wine !

 


#3

Hi.

This is always a tricky one because it depends on alot of factors. What meds your on. How much you drink. What effect it has on you. I think most people when trying to manage their health cut out or cut down on alcohol.

I personally like a glass of wine every so often and according to my consultant that's fine. I'm on a dopamine agonist. Too much ie 2 glasses these days is a big night out and I am sluggish next day. So that doesn't happen any more.

Like Parkinsons, everyone is different. 


#4

I consider myself lucky.  I can, and do, drink a whole bottle of red wine in an evening, about once per week.  My wife doesn't drink and I feel it is a crime to put a cork back into a wine bottle.  The day after, I feel fine and am sometimes surprised at how mobile I am.

If, however, I eat a large steak with the wine, I am an absolute wreak the following day.  But once or twice per year I think it's worth it.


#5

I should have said "wreck" not "wreak".  Maybe it's the wine.


#6

Hi Martini,

The steak thing is an interesting twist, I wonder why that is?? Must admit I do enjoy a bottle of red, however I am reluctant at the moment to try it as 24 hours of mysery is not worth the 2 or 3 hours of pleasure.. Interesting though to hear about other peoples take on the subject


#7

It's the protein.  If you take anything containing levodopa, the protein interferes with its absorption.


#8

My pd nurse says take meds an hour before protein or 3 hrs after to avoid protein absorption competing with dopamine. 

Red wine and aged cheese contain some substances that can alter/interfere with  meds so I have swopped to white wine, and anything with bubbles. Added boost is after an evening out , no longer look like a vampire.

 


#9

Sorry levodopa which is of course converted to dopamine.


#10

Hi Martini, protein yes of course, you will have to forgive my ignorance, still on a learning curve with this Parkinson’s thing.


#11

yeah knocked it on the head four years just felt it took 3 to 4 days for tablets to work right again feel better for it .


#12

I usually have a beer or a glass of wine during the evening.
Before bed I have a shot of Brandy or Whiskey.
I used to drink much more.


#13

I swapped to rose/white wine after finding red on a ‘no’ list for PD? (something to do with antioxidants?).

Couple of glasses a night, with dinner & afterwards, take my meds at least 3 hours before I have a drink (Ropinirole) with no ill effects.


#14

I take a glass or two of Sauvignon Blanc of an evening. I don’t think it does any harm, and as they say, “ a little of what you fancy does you good” !


#15

Hi Wildrover,

Taking my meds (Stalevo, Sinemet plus retard, Neupro 4mg /24 hr & 8mg/ 24hr.) and drinking alcohol has not bothered me. I enjoy a pint, wine, gin, whisky, but not all in the same glass!!. The only effect I would say is that I get more sleep than normal. It has not affected me other than the odd hangover.