I’d like to share experiences of taking this drug, particularly from parkies like myself, who have the 'spelling mistake; on the GBA gene. I hope to be part of the trial of ambroxol, but this seems to be delayed indefinitely, and meanwhile I’m not getting any younger!
A few weeks ago, I started taking a low dosage of ambroxol - 30mg - every evening. I bought it from Amazon under the trade name ‘Brontex’. I chose late evening to take it, because I take my last dose of prescribed meds at 7.30 p.m. and I wanted as much space as possible between the prescribed and unprescribed, so that it would be easier to detect any negative side effects,
Since Brontex is sold as a decongestant, it was hardly surprising that it has greatly reduced the amount of cattarh I get when I wake up in the morning.
I have heard on the grape=vine, that a number of parkies similarly frustrated by the delay in the trial, are taking either 30mg or 60mg. If you are one of them, I’d be interested in your experience.