Hi All, been diagnosed a couple of years and didn’t really have much in the way of symptoms before. My main issues are a strange wobbly muscle in my neck and anxiety. The muscle is called the Suprahyoid Muscle and the Consultants had never seen it before. I had botox in it but didn’t make a difference except my voice went slurred after 2 days so probably a side effect. Its still the same but I’m hoping it goes away as Botox fades away! It drives me mad as it goes on for hours at a time sometimes. Has anyone experienced anything like this. We are going to try a higher dose of Botox next time but need to be careful re voice.
I never had a days anxiety until about 2 years ago but my understanding is that it is because of the disruption of neurotransmitters. Having CBT and started on Prozac but I wondered what meds any other sufferers are on and any advice?
Trying to get to work for a few days a week but these are causing me problems.