I am new to both Parkinson's & this forum so apologies if this topic has been covered in a previous post.
My Mum was diagnosed about 18 months ago & we are struggling to be honest. Unfortunately ( for various reasons) we have been left without a specialist Parkinson's nurse & Mum's GP is not the best I have encountered. So I'm hoping someone out there can help. It's the anxiety that seems to be causing most problems. Mum has seen GP relating to this & was on a course of anti- depressants which helped tpo a certain degree, when she seemed at rock bottom. However, some days she is literally crippled with anxiety & in 2 years has gone from a happy, outgoing lady who was a member of various societies (knitting, crafting etc) she volunteered for various community activities &had many friends. These days she doesn't want to see people, cries constantly & even a trip to her favourite shop (M&S where she worked for 30 yrs) has become a huge ordeal.I live 30 miles away & also work & so keep in touch by phone a lot. Some days she won't even talk to me .Most of her care is provided by my 80 yr old father who is not in the best health & they have a lady who helps with the cleaning & a gardener.
It's the not knowing how she will be from day to day that we struggle with. The GP is very reluctant to change any medication but has given her a very low dose of Diazepam with a warning that it's highly addictive ! This has made Mum reluctant to take them, although they do help a little if we can persuade her.
Does anyone have any advice for us as like I say we are struggling to cope & I am now feeling very stressed & anxious myself.