Hi my name is Jo, I was diagnosed with PD 2 years ago. I have left hand tremor but otherwise pretty well apart from depression and anxiety. I take medication for this but not sure if its helping. Recently my husband contracted Sepsis and although very lucky to be alive is now permanently blind. I am now his full time carer. I would love to hear from other people who care for something whilst dealing with PD. I want to remain positive and have a good life. Any advice greatfully received.
Hi and welcome, @Jo1960. You’ll find the members of this forum very friendly and supportive. We’re pleased to hear that your husband pulled through his sepsis, but sorry to hear about the outcome with his vision. However, this presents you with a huge challenge and we know this must be very worrying for you.
Hopefully, your GP or Parkinson’s nurse has stepped in to offer some resources. We have good advice for carers here and although your husband doesn’t have Parkinson’s, the information will still stand.
Did you notice we have a section of the forum for Carers? Please click on the three lines at top right and scroll down to Categories to find this. We will, of course, have members with Parkinson’s taking care of others too, so they may jump in with support.
If you’d like someone to talk to and offer further advice and support, please be in touch with our Helpline advisers on 0808 800 0303.
Take care
Janice
Forum Moderation Team
Thank you so much, its good to hear that you have a section for carers.
Hello Jo, I was diagnosed 4 years ago and like you have a left hand tremor. I am also a full time carer for my husband and have been for 17 years. Recently it has become much more difficult as his mobility has declined dramatically. (He has a spinal cord injury). If you haven’t already done so, do ask for a Needs Assessment and Carer’s assessment from your local social services department. If there’s a Carer’s Centre nearby it would also be worth getting in touch with them. They can offer advice on local support as well as on benefits such as PIP, Carer’s Allowance etc . The national organisation Carers UK can also help. Accept any help that you can and also try and find a little time for yourself- easier said than done, I know but its important to care for yourself as well as your spouse. A friend who is blind found RNIB helpful too. Apologies if you already know all this. Wishing you well.
Thanks so much, it really helps to hear from others in the same position. I hope you are ok tol
I posted something last year asking if any other pwp were carers and got a reply from someone caring for a sister see