I have recently been experiencing severe off periods lasting two or three hours with painful muscle cramps, during which time I can hardly walk. My neuro has recommended that I be fitted with an Apomorphine infusion pump (apo-go) and I have an out patient appointment in a couple of weeks time. I just hope it gets results.. Meanwhile, I would like to hear from anyone else who has had this treatment. How successful was it? Any side effects? Disadvantages?
My doctor started me on Apo-go about 3 years ago. Things were getting bad for me and doc thought that it was time I tried it. I went into hospital for a week to learn how to put the needle in every morning.
I kept going with it but I was very anxious, having panic attacks and ended up in hospital for 6 weeks. I kept going again and very gradually let it help me. I'm on Madipar, Stalevo and Amantadine (plus a bunch of others).
I proved that it was helping me one morning because I set the pump up etc., went to work and at 10:30a.m. went completely "off". l soon realised that I had forgotten to put the pump on and it took about 20 minutes to come back again.
It has certainly gone right down my list of things to worry about! Hope you have success with this medication.
Thanks Casie. Apparently, they are going to try me with the pen first (self inject). Fingers crossed!
i tried Apo using an infusion but I came off it for three reasons,firstly I am rather lacking I spare flesh so it was very difficult to find a place for the needle resulting in bruises where it had been. Secondly I felt very nauseous and lost my apatite and thirdly it made no difference although when I had the Apo challenge back in December using the Epi pen it worked well. Have you tried the Epi pen yet and if so how is it going