Hello, I have not posted before but am needing to reach out as I am in shock.
This week my husband, just 57 was told that he is in the advanced stages. The medication is now not sufficient to keep him mobile. It has been suggested that he go for an infusion medication - apomorphine. Does anyone have experience of this and/or daily patches that have also been suggested, but these are described as a short term thing. Thanks
Hello DAG,
We are very sorry to hear this and we are here for support. We’d definitely recommend speaking to your husbands GP or Parkinson’s professional to get a proper medical assessment, but we’re also here to support. Please pop our helpline a call on 0808 800 0303 and our team can help.
All the best,
Parkinson’s UK Moderation Team
Hi @dag. My wife use the APOGO pen since 2019 set to number 3 out of ten , this worked well as a pick up on the down cycle , lasted around half an then her tablets would kick in .
My wife used the pump for around a month . Back in 2022
First day she was up and running around like no tomorrow… After around a week she asked me to turn the settings down , I believe it was on 4 at that time .
it was also given her very bad hallucinations .
After a week or so it was turned down a bit at a time to something like 0.25 , we told the Britannia team of this … and they said… it was not enough … practically not feeding the body with any drug ! . Could have been a placebo effect…
She came off it after around a month. Due to side effects and went back onto the pen , mostly due to having to carry a pump around all day and a tube . it is small though she found it was more of an inconvenience .
She went back on the APOGO pen , but even now it has more side effects, as in hallucinations apparently it will after several years of use .
The patch my wife has is a Rotigotine again very good but you need to get the right dose as in size 4,6,8 mg it will need some adjustments .