Morning to you all....just wondering how often do you see your PD nurse?
We were told in the beginning by the consultant it would be every 6 months to be seen by him and every 6 months to see PD nurse. So we saw someone every 3 months.
We were seen by the consultant at 8 months obviously we realise they are busy so were not unduly worried about that.
We saw PD nurse last November nearly 10 months ago so not seen or heard from her since..despite leaving messages on her phone. She was copied into the consultants letter.
Things are changing rapidly with my Husband but cant even get a GP appt until August 18th......
Feeling very much at a loss and quite let down by the lack of support, ,wondering if this is normal? We are in Wiltshire are other Counties the same?
We were told in the beginning about all the support around but sadly we dont seem to be able to find it....I know we can ring the PD helplines but its not the same as having someone in the same room so they can see what is actually changing......
Hope you all have a lovely weekend and thankyou in advance for any help or advice you can offer us x