(Archive - daily life)OBSESSIONAL COMPULSION DISORDERS


#1
THESE ARE EDITED POSTINGS FROM THE PREVIOUS FORUM ( BY ME )
I HAD TO EDIT THEM, BECAUSE ADMIN DELETED THE FULL VERSION YESTERDAY
ON GROUNDS OF UNSUITABLE MATERIAL

THEIR ARE POSTINGS FROM
BLUEYES47----KATE-----MART----HELLANDBACK
FAHRENHEITER---GOLDILOCKS



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Author Topic
HELLANDBACK
newbie



4 Posts Posted - 13 December 2007 22:31


________________________________________
Hi everyone if you have a minute i would like to share my story with you.
My name is Brian Docherty and i have PD.
I was diagnosed with PD when i was 28 i am now 36 you are about to read why i am using the name HELLANDBACK.
After various ****tails of drugs i was prescribed Cabergoline June 2001 along with Amantadine as well as Sertraline,everything was good i feel good and felt like a could return to work after a short spell off.I got a job as a trainee carpenter{as i showed no signs of PD i never told them my illness}.After years of feeling worthless and useless i was on top of the world i felt good bringing home a good wage supporting my family.At the time i thought all was good but looking back i know it wasnt.I now know it was the start of a long line of obbsesive compulsive disorders.First i had bought more tools in 6 months than 5 carpenters would by in a life time.Then why i cant explain i developed an obbsession with charity shops which became so severe i would take hours even days of work to go to these shops covering a 50 mile radius and even returning to the local shops 3 4 times a day in case i missed something i dont know if it was for a bargain or just to visit as most of the tonnes of clothes i bought i never wore.Drinking also became an issue i have never been i drinker before as i could only handle 4 pints of beer now i was in the pub at 10 o clock work break{2 pints}.1 o clock break {2 pints} after work {3 pints}then going home to drink about 6 cans of strong beer.Soon this this was to much for my employers and was sacked.I managed to jobs on site as i picked up the trade easy enough but soon i would let them by doing the same.I could not explain this behavour to my self{as i knew deep down it wasmy nature to let people down espeically my wife and family.I last carpentry job i had was Whale island in Portsmouth i was getting very depressed my Parkinsons was slowly coming back to haunt me i was getting tired and was trying despertly to hold on to the job eventually i lost the job.2004 i admitted to defeat to myself i would never work again Drinking and depression took its toll and in May i got to see a shrink and after two sessions i stopped because after talking about my unpleasent childhood i was becoming a very aggresive and could not stop thinking about the past.I would wonder of hours causing my wife to worry out of her skin.After been missing most of the day my wife came looking for me and found me wondering about in Portsmouth,driving back home i say the man who made my childhood hell i stopped the car got out and beat him up.He was with my auntie at the time and out of spite she informed me my dad was not my real father i was shocked and now was feeling aggresive towards my parents.After a series of major arguments and my mum not telling who my real father was i broke down late one night and was taking to St James mental health hospital the said they was full and could only send me Brighton, then they said no to this and sent me home.Tiredness was now a major problem but debts where occuring and the mortgage was behind in payments i had to do something i begged the doctors for something that could give me energy so i could work but nothing .I started taking speed to help with tiredness a very little amount did the job{5 pound worth would last 4 days}not long after i found work again as a labourer but the demons had returned charity shops and going to the pubs eventully meant i was unemployable.Early 2005 i was doing very strange things like go swimming in a public swimming pool without a towel putting my clothes on while wet and walking around as if it was normal.I would go missing for days at a time my wife had informed the police and because of my behavour sent out spotter planes looking for me.It had got a point my wife had enough of my behavour and filed for a divorce i needed my wife because i love her and i knew i could not carry on without her{ireally meant but was not showing it}.
May 2005 i saw my consultant and Sinemet was added to my prescribtion something i previously refused to take as i am worried of the effects of when thy dont work as well as they should{dyskanesia}Hopefully these would put my life back on track,soon for some reason i began to gamble something i had never done or even thought of,It soon became the only thing i would think about 24/7.I had to be in the bookies betting i started stealing money out of our bank account,selling our furniture,my camera,my chain,stole wifes jewellry and even stole money from the kids.I was a disgrace to my self but the shame of what i was doing was enough to stop me gambling.I would steal things from shops {something i have never done}the riskier the theft the better,it got to the point were i was going into very expensive jewellery shops pretend to be interested in buyiing expensive watches and as soon as i held them i would run out of the shop.I would sell these for money to gamble after a couple of months of stealing i got caught all in all i stole 3 watches and diamond braclet totalling 12000 pounds.I revieved 1000 pound fine 2 yr probation and 1 yr suspended sentence.Still i could only think about gambling i would go to GA to help but it was a waste of time{in my circumstance}
Christmas 2005 i stole the food money and the kids present money gambled it and lost the next day i tried killing my self by driving my car at 40 mph of portsdown hill{my car had 3000 pound of damage i had a sore neck thinking about it im not sure wether it was to kill my self or to seriously hurt my self for ruing my familys christmas.Feb 2006 my consultant chhanged my Cabergoline with Pramipexole straight away the gambling thoughts would keep me awake within days of changing medicines i stole my wifes bank cards which she had hid and even though we only had 260 pound overdraft the hole in the wall let me withdraw 800 pound straight in the bookies and lost i wanted to die so i went and sat in the middle of a very busy road put my head down closed my my eyes and prayed i would be hit.I wasnt i neede a hobby to stop me thinking of gambling so i began to make cakes for the kids.I was beginning to do strange things like varnish floors and kiitchen cupboards in the middle of the night, cook roast dinners in the middle of the nightand even draw triangles all over my garden.May 2006 one saturday morning around 6 o clock i began making cakes i relised my inlaws {who live next door}were out at a friends house so i took there spare door key went in there house and rumaged for money were i found 1500 pound witch was the money his mum had gave him to put by for her funeral in case the worst happened{few months earlier her husband died and she was worried}I took the money and within 45 mins of the bookies opening i had lost the lot.I stayed out till sunday in a daze of what i had done friend of ours found me in my car unable to move as i had no medication.She took me home i soon relised they had not noticed the money had gone.i had to get the money back on the Monday while they were out i broke in ther house stole a laptop {as i had nothing left of any value}the idea was sell it take the money to the bookies win back the money i had took and replace it{as if that was going to happen}any way i got caught in the act and confessed to taking the money as wel.My father in law who has only ever helped me never reported me to the police as he knew i would go prison.He said he despartly wanted to sort me out{i told him that it sounded stupid but i could not control my urge to gamble}
A week or so lateri took an overdose but was ok after been checked out by the hospital.Aday or so after that i took the car went to Blockbuster stole a psp sold it gambled the money the afternoon i went to woolworth stole a xbox 360 and some games sold them and gambled the money.That was enough i walked in to portsmouth police station handed myself inSoon after i recieved 6 months in prison.When i came out i saw my consultant he told me that it had just come to light that the medication that i was taking can rarly cause suicidle thoughts and patholigical gambling and advised me to stop.With in week of stopping my urge to gamble has stopped and i have now returned to my normal self the PD is ofcourse stilll worse than ever but i dont worry about as it is nothing to what i have been through.
I am slowly repairing all the damage i have done to the my family and friends that i love i feel i have regained there trust in me.Through research on the net i have found to my horror am not the only one who has suffered.
I have seeked advice from a solicitor and maybe who knows .i am just glad i have got my life back on track.
________________________________________
fahrenheiter
guru



482 Posts Posted - 13 December 2007 22:50


________________________________________
HELLO HELLANDBACK

YOUR AMOING FRIENDS HERE BUDDY .
YOU JUST READ THE LIFE STORY OF MANY HELLANDBACKERS INCLUDING ME FROM THIS FORUM.
I'M NOT GOING TO TELL YOU ANY OF MY STORY , BECAUSE THAT WILL DETRACT FROM YOUR HEARTFELT TALE.
BUT MIRROR IMAGE COMES TO MIND.
WE TRY TO HELP EACH OTHER AS BEST WE CAN, BUT WE HAVE PD , AND SOMETIMES WE FAIL.
SO LET IT ALL OUT.
NOBODY IS GOING TO JUDGE YOU HERE!!!

FAHRENHEITER
________________________________________
fahrenheiter
guru



482 Posts Posted - 13 December 2007 22:51


________________________________________________________________________________
fahrenheiter
guru



482 Posts Posted - 13 December 2007 23:10


________________________________________
________________________________________
blueeyes47
guru



345 Posts Posted - 14 December 2007 6:09


________________________________________
Dear HELLANDBACK,

Fahrenheiter is right, you are amongst friends on this forum who understand what you have been through. I was also taking Cabergoline between 2002/04 and i lost everything including my job, my home and family. It got so bad i ended up homeless followed by bankruptcy in 2005.

However fear not my friend because like me, you will grow strong again and believe me things will get better. I have not been taking dopamine agonists now since late 2004 and now take only Sinemet. My life is back on track, I'm no longer bankrupt, have no debts, have a lovely home and now my family and friends understand what happened, they are 100% supportive.

My Neurologist who originally put me on cabergoline in 2002, has been a great support to me during my recovery. He has written endless letters to courts, credit companies and even given me glowing personal references. I guess i am lucky to not only have a neurologist who accepts that DA's can destroy lives, but i think he has a conscience because of what happened.

Please let me know if you want any help or advise on how to move forward because i would be more than happy to talk to you directly.

Take care
________________________________________
Mart
guru



526 Posts Posted - 14 December 2007 6:15


________________________________________
Hi HellandBack
Your circumstances are tragic as well as cruel and you if anyone, I feel has enough to initiate litigation. The trouble is that the law of precedent so often determines the judiciary outcome of cases and as these issues we face are so complex we are put off by the prospect of seemingly endless red tape and lengthy court appearances. All it takes is a solicitor with enough courage to run with a case like and stand up to the apparent might of the defendant whether its the pharmaceutical company or someone else. I wish you all the best, if I had the resources I may have considered going that route.
________________________________________
goldilocks
guru



302 Posts Posted - 14 December 2007 7:07


________________________________________
hi hellandback,
firstly welcome, sounds like you have been through the mill, but there is a light at the end of the tunnel, keep smiling and start enjoying yourself after all laughter is the best medicine.
lol goldi...
________________________________________
Kate
guru



115 Posts Posted - 14 December 2007 7:16


________________________________________
Dear Hellandback, you and your family's suffering must be unimaginable. As if PD at such a young age isn' t enough! I hope you will be able to get back on your feet and that you get a lot of support. I have a question: are you still on Sertraline ? This is, because I think the modern anti-depressants can cause some of this behaviour too, so if you add to that a DA you get a double whammy.
________________________________________

#2
NORE POSTINGS FROM THE PREVIOUS FORUM
INCLUDING BMAG06---PIPPA----COMPANYPLEASANT---EVO---MARYIL---MJW114
CECILY---BRYN1DAVIES----WOOFY


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Advice on using this forum | All Forums > Welcome to the Parkinson's forum > Living with Parkinson's > compulsive behaviors on pramipexole



Author Topic
woofy
newbie



9 Posts Posted - 05 July 2007 0:57


________________________________________
Does anyone have experience of compulsive behavior side effects of certain dopamine agonists esp. pramipexole?.These include gambling/sexual behaviors/and no doubt others.
More importantly did your neurologist warn you about them?I think people are not talking abiout these behaviour effects much.Am I wrong?I have had a really tough time with pramipexole...
________________________________________
bryn1davies
guru



230 Posts Posted - 05 July 2007 1:35


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Woofy

Compulsive behavious and enhansed sexual libido is known to affecct many on certain types of agonists. Unlike yourself many cannot or will no aknowledge to themselves they have a problem. You have- weel done

Now that you have identified that you have a problem it's a step in the right direction. The next step is to make an appointment to see your specialist tell him the problem and he should change your medications. There are many other agonists you can move onto that sould not affect you.

Regards

Bryn
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cecily
guru



1346 Posts Posted - 05 July 2007 3:28


________________________________________
Hi woofy,
Please read earlier thread on "compulsive behavior" about page 6 and "mirapexin" (pramipaxole) again page 6.
Regards, Cecily.
________________________________________
mjw114
natural



30 Posts Posted - 07 July 2007 18:34


________________________________________
Hi woofy
Can I just say you are not alone... mirapexin is responsible for me suffereing compulsive behaviour and caused me a large amount of debt and severe marriage problems. I did not know in my own mind what was happening, and am now suffering greatly... I am however on the mend and have reduced my dosage which was agreed relutantly by the neurologist, and i am back in control...there is hope and i am working hard to pay off the debts....i wasn't warned of the effects of the drug and have posted regularily to warn others

my thoughts are with you

matt
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maryjl
newbie



5 Posts Posted - 10 July 2007 15:06


________________________________________
woofy - I too have experienced unbelievbly from compulsive behaviuour which has cost myself and my family many thousands of £££. Would be happy to discuss privately if you wish.
________________________________________
evo
newbie



10 Posts Posted - 10 July 2007 21:38


________________________________________
Looking on the search, compulsive behavior seems to be more common than the facts published. I took Cabaser for 4 years, got a real gambling problem. Never thought at the time that the two were linked, just thought I was going nuts. I saw on the internet a report that said around 1% sufferd this side effect, my consultant was surprised.
I think they are more aware of it these days, my consultant won't put me on any agonists now
________________________________________
evo
newbie



10 Posts Posted - 10 July 2007 21:52


________________________________________
PS I also wanted to say that it me about a year to get it out of my system, looking back it was like I stepped into a parallel universe for a while, wasted 2-3 years of my life....There is light at the end of the tunnel, stick with it.
________________________________________
companypleasant
natural



39 Posts Posted - 11 July 2007 10:54


________________________________________
Hi All
I to have suffered divorce and loss (waste) of funds , in my case due to pergolide (5 yrs) .
Any notion that this is a new phenomenon is nonsense, it has been known since 1973'ish that L Dopa could cause hypersexuality and specifically since 1989 that Dopamine Agonists could cause compulsive behaviour .
Also see - Google search - type in---- "BBC news (health) settlement for sex drive patient"
One of the drugs he was on reffered to in the case as 205 502 was quinagolide a dopamine agonist very similar to pergolide


Jon
________________________________________
Pippa
newbie



7 Posts Posted - 11 July 2007 15:31


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I posted a comment about this problem onto this forum about 2 weeks ago. My husbamd was prescribed pergolide and developed compulsive sexual behavioural problems.

Once the problem was uncovered his drugs were changed to ropinerol but the problem continued. I recently wrote to GlaxoSmith Kline complaining that there was NO information about this side effect on their leaflet for ropinerol and requesting compensation for the losses and distress caused to us eg massive telepohone bills and cost of counselling etc. They wrote back with a copy of a new drug information sheet which lists compulsive sexual behaviour and gambling as side effects. They said that compensation was not appropriate but if we wanted to see a solicitor etc......

I haven't got the stomach or the energy to pursue this problem at the moment but would be interested to hear from others who have asked for compensation.
Pippa
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bmag06
guru



51 Posts Posted - 09 September 2007 3:19


________________________________________
hi pippa i am on ropinorole 14 months and gamling is getting out of hand. 2nite i got ur post and wanted to give you moral support if nothing else. myself personally am going to beat this i have giving up cigs 8 weeks now and if i can give them up i can get off the poker machines that are my vice i will literaly feel like new person . i never thought of compo but my debt is small compared to others, as for the other problem u mentioned i gotten an interest in internet and you can imagine what ive seen , cant actually believe im admitting to this but its better in than out they say. i hope you and your husband overcome your problems and have a decent life , sorry when istart i cant stop ravig hence the internet admission, bye now bmag06 is away.
________________________________________

#3
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Advice on using this forum | All Forums > Welcome to the Parkinson's forum > Living with Parkinson's > Gambling



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Author Topic
pokermid
guru



479 Posts Posted - 18 July 2007 8:47


________________________________________
Hi
Has anyone out there become a compulsive gambler since taking Sinemet or Pergolide.
Since I was diagnosed 6 years ago I,ve gambled and lost over £120,000 .
In the US their are numerous Class Actions been taken against the Drug Companies by various Law Ftrms on
behalf of PD sufferers who have developed this compulsion behaviour through taking Mirapex.
The Drug Companies even list it now as one of the side effects.

pokermid
________________________________________
weedy
guru



210 Posts Posted - 18 July 2007 9:35


________________________________________
Hi Pokermid,
welcome to the forum.

I have not yet read the other posts you have put up this morning, so please forgive me if my answer is inappropriate. I have just done a search for "gambling" and it came up with 8 previous posts.

Regards,
Weedy
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pokermid
guru



479 Posts Posted - 18 July 2007 9:48


________________________________________
hi weedy

nice to make your aquaintance

please call me peter

Its nice to chat with people with the same problems


peter
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SammysMum
guru



99 Posts Posted - 18 July 2007 20:34


________________________________________
Husband had the same problems on Ropinirole, totally out of character as he was always a bit of a tightwad before. We came close to divorce and have recently had to remortgage. I contacted a few law firms with a view to suing SmithKline Beecham but they were all too scared to help or said we would be dragged through the mud. It is bad enough dealing with the physical effects of PD but nobody warns you about the emotional side, and I still dont think that its mentioned as a side effect on that drug (forgive me if I'm wrong.) Hubby has a new consultant now but I think the old one seriously let us down by not mentioning the emotional toll like depression. Very angry just thinking about this topic.
________________________________________
pokermid
guru



479 Posts Posted - 18 July 2007 21:18


________________________________________
hi sammysmum

i know what you have and probally still are going through.
Its soul destroying!
I,ve been married to a wonderful wife for 30 years but it certainly tested our relatioship.
I would like to send you something I,ve written about myself on this subject.
It might help.
I am still on Sinemet Plus and CR and Ropinirole and I fight the temptation each day but i still "break out "occasionally
Keep your spirits up

Regards Peter
________________________________________
mjw114
natural



32 Posts Posted - 18 July 2007 23:05


________________________________________
hi pokermid

my life has been ruined by this too....i have emailed you.
________________________________________
companypleasant
natural



39 Posts Posted - 18 July 2007 23:09


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Hi everybody
yes, same here, can't say too much yet -(pergolide)- suing my consultant / hospital
________________________________________
companypleasant
natural



39 Posts Posted - 18 July 2007 23:32


________________________________________
P.S. google for "Richard Davis Roger Henderson Q.C. sex drive claim" he won on appeal 18th July 2001
.
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companypleasant
natural



39 Posts Posted - 19 July 2007 6:22


________________________________________
Hi all
go to google search and type in " bbc r4 health am i normal madness"

click on ---"listen again"-- scroll down to "programme 2 listen again" -and when the player starts click on and pull the fast forward slide button to 16 mins
( this is very fiddly you''ll have to stop before) and listen to prof. Robin Murray
you.ll need real player for this --i think you can download it from the bbc
________________________________________
Pippa
newbie



7 Posts Posted - 25 July 2007 10:19


________________________________________
Hi Sammy's Mum
I was so pleased to read your posting on the problems wives/carers have with the mood and personality changes caused by the Parkinson's and the drugs. My husband also became compulsive because of pergolide and then ropinerol. With him it was pornography - in particular on the Internet. It jhas caused a lot of stress in our marriage and cost a lot of money. Eventually he stopped taking the drugs in April this year but has been really depressed since then. I like you have rung up solicitors and have also written to the drug company complaining about lack of informatiom. The solicitor was sympathtic but thought it would be too costly. The drugs company sent me an up-to -date leaflet that did mention urges but nothing specific - however all the drugs leaflet we had did not mention it at all which means they have not withdrawn the old leaflets.

I guess until one of us does get compensation it will not be taken seriously. Any way I'm with you on this and get very angry and upset when I think about it.

Parkinson's is difficult enough but compulsive behaviour just creates another layer of anguish.
Pippa
________________________________________
companypleasant
natural



39 Posts Posted - 26 July 2007 19:53


________________________________________
Hi Pippa
if you are not already could you register on the PDUK forum and contact me companypleasant
Jon
________________________________________


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Author Topic
phil
guru



93 Posts Posted - 26 July 2007 20:20


________________________________________
when i was on apo-morphine i was also and still am on mirtazapine i started to go on the roulette in betting shops never lost much would stop after bout 30 or 40 quid but i also used to win by predicting when a zoro was due would put a fiver on and regularly won i had never gambled and i dont do it now but get the urge when pasing
________________________________________
Pippa
newbie



7 Posts Posted - 30 July 2007 16:54


________________________________________
Jon
Don't see how to contact you. I am registered on the forum. I clicked on companypleasant but couldn't see where to go.
Pippa
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companypleasant
natural



39 Posts Posted - 30 July 2007 22:26


________________________________________
Hi pippa sorry I was referring to the other uk forum recently started (PD UK ) as I don't think you can contact privately here
Jon
________________________________________
Pippa
newbie



7 Posts Posted - 31 July 2007 10:04


________________________________________
Jon
I am registered but don't know how to contact you on company pleasant.
Pippa
________________________________________
Pippa
newbie



7 Posts Posted - 31 July 2007 10:08


________________________________________
Didn't realise that my reply had got there so posted another - sorry. It was on the second page. I'll have a look at the other website Jon - thanks.
Pippa
________________________________________
companypleasant
natural



39 Posts Posted - 31 July 2007 12:15


________________________________________
Hi pippa sorry PD UK isn't very helpful it's http://pduk.org/forum
________________________________________
bmag06
guru



53 Posts Posted - 06 September 2007 14:18


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hi pokermid my family never believed me when i said my gambling was getting worse, im taking ropinorole, not the sames as yours but just as bad by the chat in other posts, i really hope you beat addiction, apart from bad health debt must be the next worse problem, il chat you soon bmag06
________________________________________
pokermid
guru



479 Posts Posted - 06 September 2007 14:37


________________________________________
hi bmag

thanks for your support.
its much appreciated.
my meds include; ropinirole,sinemet plus, sinemet cr, madopar,propranolol and the most recent addition is rotigotine patches.
quite a haul.
I,ll never be able to quench my thirst for gambling, but there ways and means of restriction.
i always liken it to a fire
what are the ingredients of a fire.
ignition......fuel......air
take away one of them .........no fire
with gambling
the meds are ignition
pathological desire is the air
money is the fuel
i can,t take away the first two
but the fuel certainly can

chat with your loved ones , arrange an allowance per week.
good luck
peter
________________________________________
bmag06
guru



53 Posts Posted - 06 September 2007 16:04


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thanks pokermid im just on ropin and inderal-la , my preferred vice is poker machines and i know u said take out the spark etc but i like a sociable bottle of bud now and again and i dont or cant avoid machines in ppubs its like a bad itch that really needs scratching. thanks for listening, boy am i glad i found this site, its a great source of info reading peoples stories and knowing im not alone is actually agreat comfort. bmag06.
________________________________________
pokermid
guru



479 Posts Posted - 06 September 2007 16:29


________________________________________
hi bmag
i have the same problems in pubs as you do " wheres the fruities "?
i get my mates to drag me off, or i used to.
i pretended i was going to the toilet, but then i,d slip a tenner or two in the fruitie.
my pals soon cottoned on to that.
they would come up and turn the machine off or start pressing all the buttons.
infuriating but effective.
i know how hard the compulsion can be.
you cannot resist alone.
you must enlist help from people that know you best.
keep your spirits up.

peter
________________________________________


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Author Topic
Vic
guru



926 Posts Posted - 06 September 2007 19:23


________________________________________Good advice Peter, well done mate!!
________________________________________
SammysMum
guru



99 Posts Posted - 06 September 2007 23:35


________________________________________
My advice is similar to Peter's. I give my hubby an allowance now as he had similar problems. He also tells me if he has a moment of weakness. We used to fight about it and he would be afraid to tell me, even if he felt terrible about it (which he usually did.) But now we are fighting the addiction together, and because I have accepted that its beyond his control, I dont blame him. It sounds ridiculous, but you would have to have known him before he got PD to know how out of character wasting money was to him before. The machines in the bookies became his weakness - you can blow hundreds of pounds on them playing roulette. I would think he had it under control, become complacent and leave the credit cards with him, next thing we knew he had succumbed again and we would be a thousand pound poorer. Now he tells me and it reminds me that the threat is always there, although its definitely diminished since he came off the cursed ropinirole. Good luck.
________________________________________
Vic
guru



926 Posts Posted - 07 September 2007 7:26


________________________________________
Hello SammysMum,
Ropinerole ,as with other medication, seems to affect people in different ways,- or maybe it's the dosages.
Iv'e been on this med.for just over 3 months. The only negative thing I've found so far ,and very annoying, is loss of libido. Rpinerole has also been blamed for at least one driver falling asleep at the wheel. It is wise to use all meds. with caution!
I'm so pleased for you, that you are now working together on the addiction problem! All good wishes to you and family. Vic.
________________________________________
milner
newbie



10 Posts Posted - 07 September 2007 12:49


________________________________________
Hello,

I don't have PD but my husband does. Like a number of people here he has had a serious gambling problem. This started 4-5 years ago as a result of taking dopamine agonist drugs and in August 2005 he lost £7k in one day - things finally came to a head. At the time he was taking Mirapexin and although the consultant said he was unaware of the link and we were told it was an unlikely cause we insisted he stop the drug and he changed to Ropinirole. Over a 2-3 year period he had lost over £70,000 but even on Ropinirole he has had a number of gambling binges. In September last year we were forced to move house to pay back the money he owed and I now find out that it is happening again!!!!. Even though I believe the problem lies with the drugs I'm still really angry at him for not telling me as I used to think we were very close. However, what makes me even more angry is that I have investigated taking out a legal action against the drug companies but have been advised by Leigh & Day solicitors in London that my husband's case is 'too complicated' to take on a 'no win no fee' basis as he has been on more than one agonist drug. So, the drug companies don't take responisiblity and the legal profession don't want to know as I don't have any money left to pursue a case.
I can't take any more strain financially or emontionally as in the last five years we have been under enormous pressure BUT like everyone else here his behaviour has been totally out of character and that's the only reason I haven't given up on him.
So what happens NOW? How many people are suffering like this and what do we do about it ? I'm sick of being treated like its my problem and I want to do something ! My question is WHAT?
________________________________________
pokermid
guru



479 Posts Posted - 08 September 2007 6:41


________________________________________
Hi Milner

You have got to be strong for both of you.

Your partner, like myself is unable to check the compulsion of gambling.
Once in his " Bubble ", everything else is meaningless.
He becomes oblivious to everything around him.
Nothing else matters.
And then its all gone.
Every Penny.
The " Bubble " bursts, and he,s back to reality.
Guilt and remorse sweeps over him.
And its genuine.
But you can only say sorry so many times.
Despair and emptiness bring on depression and anger.
and the cycle continues.
You are suffering too, but you are in control.
You have to be the strength to carry both of you.
You take the financial reins.
If you want to survive. Be Strong Milner.

pokermid
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milner
newbie



10 Posts Posted - 16 September 2007 19:08


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Thanks for your reply but having gone through this for so many years I feel my strength is running out. I don't want to just put up it down to the drugs and forget about it, I want to fight! The trouble I have is knowing where to start.
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pokermid
guru



479 Posts Posted - 20 September 2007 6:31


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hi milner..............try googling this site to get more info



Mirapex Lawsuits
Mirapex Lawsuits Information

In recent months, several lawsuits have been filed in both state and federal court in response to the losses suffered by patients prescribed Mirapex. We are currently at the forefront of these investigations and are pursuing claims for clients in many states across the U.S.

Mirapex is the most commonly prescribed drug used to treat idiopathic Parkinson's disease in the US. Mirapex has also been linked to pathologic gambling in some people who take the drug. It is designed to increase the body's production of dopamine and control the signs and symptoms of Parkinson's disease. Unfortunately, use of the medication can result in impulse control disorders like gambling. Every year 60,000 people are diagnosed with PD. More than half a million people have been diagnosed with PD since Mirapex gained FDA approval in July 1997.

Over the past few years, information has slowly become public that appears to link Mirapex to gambling. In fact, although Mirapex has been around just shy of a decade, it is still the #1 most common link to pathologic gambling even when going through FDA statistics as far back as 1960. As Boehringer Ingelheim continues to dispute the findings, more people are coming forward every day as they experience this out of character behavior. Studies by the Barrow Institute of Neurology, the Mayo Clinic, and the latest by the FDA indicate that Mirapex is a liability to people who take the popular Parkinson's disease medication.

Many people are not aware that their personality and behavioral changes are the result of taking Mirapex. Some patients experience abnormal thoughts and behavior in just a few weeks after beginning treatment with the drug. Right now lawsuits are being filed by victims in increasing numbers all over the country.

How do I file a Mirapex Claim?

If you or a loved one have developed any sort of compulsive disorder after taking Mirapex, you may be able to file a claim against the manufacturer. If you would like to have us help you determine whether you may have a claim, click here to fill out the free claim evaluation form.



Additional Mirapex Lawsuit Information

Mirapex Information
Mirapex Attorneys
Mirapex News
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RPB
regular



23 Posts Posted - 02 October 2007 2:52


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I am new to this drug lark , but sueing drug companies for side effects sounds like madness . I am happy to help in the search for better meds . If we all get upset because of side effects . Maybe the drug companies will give up the search for better solutions for fear of being sued.By the way , anyone got any good tips for the races this weekend ? , and did you see that bit in Debbie Does Dallas ! hehehe :)
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cecily
guru



1361 Posts Posted - 02 October 2007 7:36


________________________________________________________________________________
mcgee
guru



104 Posts Posted - 02 October 2007 10:09


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pokermid
guru



479 Posts Posted - 02 October 2007 12:13


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mcgee
guru



104 Posts Posted - 02 October 2007 12:38


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Good morning Pokermid and welcome back to the level playing field.

Even your last post shows how dedicated you are and the reasons I joined this forum. Like you peter I have moments when I could blow up the world so I for one understand.

Anyway, keep up the good work!!!!

Regards

McGee
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passeggiata
guru



373 Posts Posted - 02 October 2007 14:17


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Hi Pokermid,
Since I was one of the people calling for it, let me say that it was a well-considered and honourable apology you have made.
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Vic
guru



926 Posts Posted - 02 October 2007 23:26


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Hi Peter , I'm off line for a few hours and the world blows up!!!
I have caught up on some of the flack,- My old mate, you went OTT with a vengeace!! I'm so pleased that you are still here. You are an invaluable source of information and help on here. Please try to keep your cool, as the younger generation say ! Best wishes. VIc


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SammysMum
guru



99 Posts Posted - 03 October 2007 20:49


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I have to defend my mate Pokermid - a fiery character if ever I saw one! He keeps me amused with his jokes but I can understand why he blew up on this one. Everyone is entitled to their opinion, but until you have suffered the misery and anguish that compulsive gambling brings on a family, then you will never understand why we feel so strongly that we've been let down by these drug companies. Forewarned is forearmed they say, and had I ever been told about compulsive behaviour related to these drugs then we would never have got in the state we are in now. They have the best scientists in the world on their books, and we innocently take the drugs they peddle because we dont know any better. With power comes responsiblity - they cant have it all.
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Kendo
guru



50 Posts Posted - 03 October 2007 21:42


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I'm fairly new to Mirapexin, but I read the warnings. Although financial gambling hasn't affected me, I've had to catch myself to avoid taking risks in everyday life that common sense protected me from before I started taking it.

In some ways this has made me delay taking action/speaking out, which then leads others to notice the 'slowing down' symptom of PD even more, or is this the drugs all along and not the PD?
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zonecrew
newbie



3 Posts Posted - 04 October 2007 23:00


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Hi
I'm new to the forum but i have read with great interest this thread about parkinsons and gambling
My dad was diagnosed with parkinsons about 5yrs or so ago and as he suffers predominantly with mobilty problems (stiffness and pain) he was presribed ropinirole. Looking back I have to say that his mobility did improve when taking this medication however it caused terrible side effects, like gambling and compulsive behaviour. My mam and dad have been to hell and back with this drug, how they are still together today is a mixture of luck and perseverance. At around the time he was taking this medication he started playing bingo, this was initially as company for my gran, however looking back he had a couple of decent wins in the early days so this probably fuelled the flames of his oncoming addiction. At his worst he would be going to bingo more than once per day, every day and then he developed a problem with the fruit machines within the bingo hall. I now realise that by reading some other posts ths was small change compared to some, but as he was no longer working due to his illness this was a problem that they could not really afford. Maybe if we lived in a city it could have been a LOT worse.....casino's etc etc???
All of the family at first were pleased that he had found a 'hobby' that took his mind off having the illness, maybe this was a factor in us realising too late how much of a problem his gambling had become, anyway this was a terrible chapter of both my mam and dads lives, there were a lot of lies told, a lot of 'false dawns' and it got to the point where my dad had to make a decision on whether to carry on with taking this drug and lose my mam and his future support from her or come off it completely and suffer the probable consequence of it seriously affecting his body. He chose the latter, he knew deep down that this drug was making him do things that was totally out of character but this must have been a really hard decision to make as for the next 12 to 18 months his quality of life was almost ruined. My dads health deteriorated so bad that he hardly slept a wink of sleep (he still doesnt to be honest) and he was in more or less constant pain both in on and off periods! But, he was off the drug......during the next months a number of other drugs were trialed with him, with little positive effect. Just as my dad reached a brick wall there is light at the end of the tunnel, i dont want to tempt fate but he has a good chance of being selected for Deep Brain Stimulation, yes, this has its own risks but it could be a positive way forward for him and without the need for the drugs.

He has often spoke about claiming against the drug company, me not being familiar with the system but would a non-worker be entitled to legal aid?? Something needs to be done as these drugs have ruined many lives, not just financial as well. Some of the ludicrous claims i've seen in the past (repetitive strain injury claimants been given hundreds of thousands of pounds for an example) are nothing compared to the financial loss of some, the marriage/family breakdown of others etc etc. Hopefully someone will get a breakthrough in this area.

I did an internet search on this problem in 2005/2006 and virtually found nothing apart from the case in the USA, we were starting to think that this was a really isolated case but looks like its far from that......to anyone who is in this situation then dont give up hope and keep pushing for a way forward......
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merky123
newbie



5 Posts Posted - 05 October 2007 2:10


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well that could be true about sinemet,

my uncle took it when he was diagnosed and everyday he would walk to town and go to the betting office
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pokermid2
newbie



10 Posts Posted - 05 October 2007 7:41


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hi Zonecrew and Sparkz..............you two should form a band with names like that

The big drug companies in the US like Boringer-Ingelheim and DuPont Merck have been contesting Class Actions by affected people for years but the hidden and silent majority are coming to light now. Far more people are suffering with Obssessive Compulsion Disorders than was ever envisaged. Mainly because they were ashamed to reveal to the world what they had done or thought was their fault.
We are light years behind the states when it comes to this type of legal action.
Companies like Glaxo Smith-Kline have got it made.
They churn out the Agonists quicker than a Neurologist can prescribe them ( thats a feat in its self) without any real intentions of developing a cure.
Why fix it? when you can hold hands for years and make Billions of bucks all in the name of Medicine.
Good Luck

PM2
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barney
newbie



1 Posts Posted - 09 October 2007 11:58


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hi in the last year betting has taken over my life I always did enjoy a small bet but now its much more, its not the amount that i win or lose its just that i have to bet.Even if Iwin I cannot stop only last week in 2 hours i won 3000 pound but when i left i owed 6ooo pound any advice cheers
________________________________________


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weedy
guru



210 Posts Posted - 09 October 2007 14:50


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Hi Barney, Sparkz, and Zonecrew,
Welcome to the forum.
I am sorry that no-one with greater insight has responded to your posts.
For what its worth in my opinion you should share your concerns with a professional Health Worker, PDNS or GP or Consultant Neurologist specialising in Parkinsons.
You can additionally see what the contributors on pduk.org have to say.
Regards,
Weedy
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pokermid3
guru



59 Posts Posted - 09 October 2007 16:10


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weedy
guru



210 Posts Posted - 09 October 2007 17:27


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weedy
guru



210 Posts Posted - 09 October 2007 17:27


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pokermid3
guru



59 Posts Posted - 09 October 2007 18:11


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Barney Zonecrew and Sparkz ...........my offer still stands


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cecily
guru



1361 Posts Posted - 09 October 2007 20:39


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I repeat from another post and it looks like I will again.
Tell me to go to the devil, if you like but remember I've been there too. I respect your pain and anger, I can't help you . But please realise that despite wanting to tear the world apart, there are still some suckers who care for you.
Cecily.
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pokermid3
guru



59 Posts Posted - 09 October 2007 22:48


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GRUMPY GRAMPS
guru



318 Posts Posted - 09 October 2007 23:24


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Hi poker,

I have never gambled, except on Red Rum twice and you probably know when that was, and don't have any problem now but having been on ropinirole for over a year, and now taking sinemit for three weeks I have noticed that my sense of responsibilty in making decisions which I know I should have no doubt with, is starting to go.

A bit like doing daft things when you've had a bit to drink, and I don't drink so rules that out.
Does this fit in with your know how of the problem or does it just hit you all of a sudden. My wife has started to notice my rationality or lack of it.

GG
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pokermid3
guru



59 Posts Posted - 09 October 2007 23:41


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Hi GG
Its hard for me to put my finger on it , because i believe my Diabetes plays a large part in my mood swings.
I think that the Agonists build up gradually to a level of euphoria and then subsides to anxiety and depression.
But i don;t think its constant enough to categorically say when it will occur.
I've tried all different combinations with timing and dosages but its still irregular
regards
poker
________________________________________
pokermid3
guru



59 Posts Posted - 09 October 2007 23:51


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hi GG ........I forgot to ask

Have you noticed any cravings for food or drink, tobacco etc?
even buying small things that you normally wouldn;t touch.
Sim cards, walking sticks, tobacco rolling tins, webcam, magazine holders, sets of coffee mugs
These i have bought or my wife has after ive pestered the life out of her.
sometimes it creeps up on you
i would never of bought any of those pre pd
they seem innocuous but they are not me

peter
________________________________________


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GRUMPY GRAMPS
guru



318 Posts Posted - 09 October 2007 23:59


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hi peter,

Nothing in your list but sugar and cream buns especially eclairs, i'm not being flippant but I feel I need to keep my sugar levels up. I've tried healthier ways like grapes but they do nothing for me. Any sense there?
________________________________________
pokermid3
guru



59 Posts Posted - 10 October 2007 0:34


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GG .......I suppose it all depends on whether you have always craved cream cakes or buns.
when people get depressed they look for comfort and solace.(reward ones self)
its a vicious circle and PD is spinning the wheel
im going to bed
night GG
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Pete Band
newbie



13 Posts Posted - 14 April 2008 9:38


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have a look at these threads nightangel.
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<< < 1 2 3 4 5 6 > >>

#4
Hi

I would love pokermid and CompanyPleasant to contact me. Is there anyway you can via email or phone?

Jeannie

#5
Hello everyone,

I want to say immediately that in some way I feel relieved to hear that there are other people with this gambling problem. I have a relative who I am very close to who has PD. We are at wits end trying to figure out how to help this person who is essentially gambling whatever life savings he and his wife have saved. They have remortgaged the home twice and have also been forced to downsize to a much smaller home just to deal with this obsessive gambling habit. In addition, he has also lost a lot of money playing the stock market. If this continues they will be bankrupt. What is the best course of action to stem this mounting problem?

Also, it is difficult to reason with the person who has PS. He basically denies and lies about everything. If you confront him with facts he explodes in anger and just walks away. I do not know exactly the meds that he is on. I know that they have tried a number of different kinds and different combinations of strengths etc.

I also understand that they have tried to take hime to someone professional to discuss, but he still finds a way to sneak into the casinos and gamble.

Please help with any ideas that you may have to make this come to an end. They will simply have no money left over for anything very soon. He also does not work and is dependent on his wife to provide for him and his children.

Many thanks in advance'
Ian

#6
Ianos....that original post is mine when I used Jupiter as my Avatar name.

The first thing to do is inform his PD nurse or Neurologist and hope that they get their fingers out to help this relative of yours.

What medication and what dosage is prescribed?

Can you or your family cut his purse strings?

Get him, if possible, to read all these compulsive behavior threads.

Better still, get him on-line to talk with any of us.

Try the PDS help line 08088000303

You can get me on [post edited] (this number will probably disapppear soon)

good luck

pokermid

#7
Hi all.
I was diagnosed with PD in October 2000 and prescribed Cabergoline, which I stayed on, in increasing doses, until late 2007, when I discovered (BY MYSELF on the Internet) that research was showing links between dopamine agonists and compulsive disorders. These issues had NEVER been discussed with me by my medical advisors, even though they knew of the problems I was having - see below. Had I not found out about the research I would undoubtedly still be on Cabergoline now. As it was we agreed I should come off the drug straight away. Immediately I stopped taking it all of the side effects I'd been experiencing stopped. I mean, IMMEDIATELY.
Looking back, the severity of the side effects can be seen to have been in line with increased doses. I had initially been prescribed 0.5mg daily, and this gradually rose to 4mg daily.
Unfortunately, over the intervening 7 years I had become totally obsessed with gambling, spending, sex and fetishism. I was out day and night at casinos, brothels, racecourses, betting shops, etc. I went off on a Caribbean cruise on the QE2, Las Vegas, etc, and hired piloted helicopters, Bentleys, Ferraris, Porsches, TVRs, Jaguars, etc. I bought myself 2 Jaguars, a TVR and a Land Rover, and regularly travelled to London for weekends, and obtained tickets for Wimbledon tennis finals, top boxing matches, etc.
I ended up losing my house, getting divorced, losing my job and company car, and in debt to the tune of around 400,000 UK pounds.
My son (now 19) has refused to speak to me for years, and I now live in cheap rented accommodation in the worst part of the city.
Prior to taking Cabergoline I was on 50,000 UK pounds per annum as a successful IT Consultant, with a large house by the sea in Sussex. I am now penniless, with various debt collectors still looking for me. As part of my desperation for more and more cash with which to gamble and spend I also got involved in a £45,000 fraud, which will shortly be in court.
I see a very similar case to my own in the USA resulted in a payout of 8.2 million US dollars to the poor sufferer, but I understand that in the UK it is unlikely that I'd be able to get State legal aid for such a case, nor would any lawyer be willing to take it on as a "no win, no fee" case.
Great!

#8
I know what you are going through as many on this forum have gone through it too!
These meds that were meant to combat our disease end up devastating our lives to a far greater degree than PD ever could.
Losing money and assets comes secondary to loss of partners, family and friends and also your own self respect.
Reaching your lowest ebb induces thoughts of suicide.
Stretching your mind to its limit to devise ways of obtaining funds to fuel your compulsion.
Hating ones self without realising the truth.

Welcome aboard Hullvictim.........city are doing well!

Pokermid

#9
I see a very similar case to my own in the USA resulted in a payout of 8.2 million US dollars to the poor sufferer, but I understand that in the UK it is unlikely that I'd be able to get State legal aid for such a case, nor would any lawyer be willing to take it on as a "no win, no fee" case.
Great!
-----------------------------------------------------------------

Not so!.............mail me

#10
Hi Hullvictim,
sorry to hear what you have been though,I had some side effects from mirapexin luckly its thanks to people like yourself being open on the forum I stopped before I lost my family and got into debt.
You said immediatly you stopped the meds side effects stopped,what meds if you dont mind me asking are you on now?
Take Care Dotxxx

#11
Hi.
Having come off Cabergoline I'm currently on a mixture of Azilect (Rasagiline), Entacapone (Comtess), Sinemet Plus, Sinemet CR and Gabapentin. Still experimenting, though.

#12
Hi Hullvictim

Did you find that info of any use?

Poker