symptoms are hard to describe i feel rigid and stiff and my balance feels off. i dont fall or anything. legs feel wobbly and heavy. when i extend my arms my forearms and biceps shake and feels like there is some resistance. when i bend my neck down and chin touches my chest and then i move my head back up straight feels like an invisible hand is pushing my neck down as i move my head back straight.
just a general feeling of shakiness esp in shoulders even at rest (cant see). internal tremors and when i get nervous feels like my whole insides are shaking too.
clean mri, clean gastric emptying study, clean basic blood tests, normal stool tests, normal endoscopy no ulcer celiac h pylori. normal basic neuro clinical several months ago. no emg or nerve study yet. normal heart tests ecg etc
basically i am asking could this be yopd? any ideas? family is also at wits end and think its all in my head. can a DATSCAN confirm yopd once and for all?
grandpa had essential tremor or pd or both not sure.
drugs
several times domperidone and zofran in the summer
I can understand why you’d suspect that you have young onset Parkinson’s, especially when you mention your internal tremors. I would advise that you speak to your GP about this so that they can take the necessary steps to investigate your symptoms. In the meantime, we have a lot of helpful information on website about YOP which you may find useful, you can find this information here: https://www.parkinsons.org.uk/information-and-support/young-onset-parkinsons
Our helpline and Parkinson’s local advisers are here to answer any questions you have about being younger with Parkinson’s. Call us on 0808 800 0303 or email us on [email protected].
I had a DaTSCAN at age 47 which confirmed my YOPD, having had various other symptoms. My understanding is the test is about 90% accurate. I had my test privately on health insurance, not sure how easy it is to get on the NHS, though for obvious reasons I doubt you will be able to get tested for several months in any case.
I agree JF. GP’s are probably not /have the time in the present situation. I am waiting on numerous specialist appointments and see no hope of them happening until early next year as there will be a huge backlog.
