Hi all. Ive been in my current job as a machine operator for over 20 years.
Ive been diagnosed with probable idiopathic Parkinson’s and have been off work for over 4 months i also had cholecystitis and awaiting removal of the gallbladder with a drain fitted.
I have been prescribed sinemet plus which has helped me quite a lot, although there are many tiring and painful days.
Anyhow I’m about to see the company occupational health Doctor as i would like to attempt to go back to work, my employees are very supportive yet my sick.pay is soon to run out.
Ive told them that i think that I’ll only be as good as long as the sinemet works.
When/if i get to the point where I’m no longer able to physically work obviously i shall have to stop or they terminate my employee.
I’m 56 years of age, does anyone have a similar experience and give some advice, it would be much appreciated.
We’re sorry to hear that you’ve been off work for over 4 months and have also had cholecystitis and are awaiting removal of your gallbladder. We’re glad that Sinemet plus has been helping but it sounds like it has been a really difficult time for you and it’s understandable that you’ve had many tiring and painful days. This must be tough.
We’re here for you. Our confidential helpline is available for anyone who’s affected by Parkinson’s. You can call us for free on 0808 800 0303. Our trained advisers are on hand anytime between 9 am and 6 pm Monday to Friday, and 10 am to 1 pm on Saturdays.
We also have information on our website on working when you have Parkinson’s. This includes your legal rights in the workplace, continuing and adapting the way you work, and options for the future which you might find helpful: Work and Parkinson's | Parkinson's UK
Hello Kev and welcome. The fact that the Sinemet makes a difference means that you do most probably have Parkinson’s. Parkinson’s medication working is probably the biggest proof of Parkinson’s.
I was diagnosed in June 2023 and I too take Sinemet and it helps my condition. A downside I have found is that it causes sleep issues for me. I have adjusted when I take my medication.
We are all different and react differently to our medication. There is no rule as to how long we will benefit from the medication or whether the dose will need to be increased in time.
Hi Steve, many thanks for responding.
I too have sleep issues, and also bad days like today. Just had a bout of tremors and quite bad tinnitus.
The sinemet is kicking in now and starting to settle. Hope you are good, i guess its a case of head up and carry on as best as you can.
The neurologist referred me to the parkinson’s nurses. Is there usually a delay as I’ve yet to hear from them.
Very best wishes Kev
Hello Kev … Every area is different for Parkinson’s nurses, most areas do not seem to have enough. The site here has free access to Parkinson’s Nurses. They have helped me a lot. They are excellent and know their stuff.
Phone … 0808 800 0303
Why don’t you keep a Parkinson’s diary keeping a note of how you feel and the medication you are taking.
Hi Steve, thanks for that, i shall call them tomorrow.
Yes i do keep a journal on my NHS app.
I find its a real weird conditon, theres not really a pattern or daily cycle as such.
Just had several good days then hit the wall today.
HI kevvy, I can see Steve has offered some helpful tips. I have been in your position. If you want to PM me and ask any questions about the process please feel free Ana
