Does anyone have experience of Autism and Parkinson’s ?
My husband and I have always had a difficult marriage due to his autism and probable PDA (pathological demand avoidance).
Now he is struggling with Parkinson’s things are very difficult indeed. I take Citalopran anti depressants which help a little but generally about half my life is spent dealing with his rudeness, shouting and adult type temper tantrums, and being accused of hiding things.
I cannot leave him to struggle although that is what I feel like doing. We have 3 wonderful children and 5 gorgeous grandchildren, I can’t be the one to break up the family unit but I feel I am living on the edge of a nervous breakdown for most of the time. Unfortunately our whole family live at the other end of the country.
I have tried to explain to him what it is like for me but he is not really interested.
He cannot be left on his own for long as he doesn’t take his medications. Socially, being autistic he has few friends and is no longer able to drive.
Advice would be appreciated.
Welcome to the Forum, JAS1951, and thank you very much for sharing your experience.
It sounds like you’re going through an incredibly tough time, and I really admire your strength in supporting your husband and family through these challenges. Caring for someone with both Parkinson’s and autism must be especially difficult, and it’s understandable that you’re feeling overwhelmed. You are not alone, and I’m sure there are many in this community who understand the complexities of both conditions.
It’s important to prioritise your own well-being, and reaching out for advice is a great first step. Have you been able to speak to your husband’s healthcare team about the emotional and behavioural changes you’ve been noticing? They might be able to offer support or adjust his treatment plan to help improve things.
Please know that you can also call our free, confidential helpline for support and advice: 0808 800 0303. Our trained experts and specialist nurses are on hand anytime between 9am and 6pm Monday to Friday, and 10am and 1pm on Saturdays.
Please know you’re not alone in this journey, and we’re here to support you however we can 
Parkinson’s UK Moderation Team
Hi J
Sounds like you need a break, can you arrange respite care.?
I would agree with Lar, you could try contacting Adult Social Care at your local council and ask for an assessment. They might be able to recommend supports or let you know what organisations are out there.