Await review or Report changes

Living with Parkinson's Work, benefits and money
1

Good evening all, my PiP review was due in September 2024, I completed my review paperwork ( which was sent to me in January 2024 ) at the end of February.
I have since received a text to say that my review has now been extended to September 2025.
My question is as Parkinson’s is a neurological, degenerative illness I have stated on my review paperwork some significant changes since my last assessment some 3 years ago. So I am wondering should I contact DWP to report changes in my health status as they suggest I do not need to contact them regarding my PiP review unless circumstances change.
What are they referring to in “circumstances”?
Many thanks for any advice

2

Good evening newdidit … I’m sure by “circumstances changing” they are meaning both cash needs & change in your health, If there have been any changes since you last contacted them if would do no harm to inform them. You have nothing to lose.

Best of luck
Steve2

3

Thank you Steve for your reply, I am interested in the fact you say changes in cash needs.
I have never been asked about this when applying for PiP or remember it being in the paperwork. I can fully understand that it should be.
So when I needed to retire due to ill health, some 8 years or so, on a very healthy wage and now being reliant on my NHS pension, PiP and ESA and needing to cut my cloth accordingly I should have reported that. I only receive ESA because of my national insurance contributions which in a way penalises us as we are not entitled to COL support, free dental etc etc and when my NHS pension rises by £5 a month they remove £5 from my ESA.
I’m not being argumentative but please tell me should I have reported this to PiP is it relative to them?

4

I recently made an enquiry to see whether I was entitled to extra money. I am 70 & have a full state pension also £320 a month for the lower attendance allowance.
I was referred to the PCN care network by my GP. You can self refer & they visited me in my flat & have helped me a lot.

I have Parkinson’s with a mobility problem.

PCNSOCIALPRESCRIBERS (INTEGRATED COMMUNITY CARE)

https://www.england.nhs.uk/primary-care/primary-care-networks/

I did not qualify for the extra payment as I had cash savings over a certain figure.
Do contact them for help & advice. You can also phone the helpline here at Parkinson’s Uk 0808 800 0303

Best of luck.
Steve2

5

My LO gets PIP and few years ago we did a change in circumstances, because a worsening of his non PD condition. After the review the amount of award went up, also because the PIP went up his ESA went up automatically. Both were backdated to when we told them about a change in circumstances.

Johan

6

Steve2

I’m a bit confused because I was told that PIP isn’t affected by the amount of money a person has. I know ESA is affected because when my carers allowance goes up my LO’s ESA goes down by the same amount

Johan

7

No, Personal Independence Payment (PIP) is not means tested. This means that you can receive PIP regardless of your income or whether you are working.

Sorry I was wrong PIP is not means tested. I was getting my benefits mixed up. PIP is for those under pension age.

Personal Independence Payment (PIP)

If you’re under State Pension age and have a long-term illness or disability, you might be entitled to Personal Independence Payment (PIP) to help pay for things.

What is Personal Independence Payment?

Personal Independence Payment (PIP) is a benefit for people who are under State Pension age and need help with daily activities or getting around because of a long-term illness or disability.

It isn’t based on your National Insurance contributions and it isn’t means tested, so your savings don’t matter. You can spend PIP on whatever you need.

If you’ve reached State Pension age and have care needs, you should claim Attendance Allowance instead.

Find out more about Attendance Allowance

How much Personal Independence Payment could I get?

How much PIP you could get depends on how difficult it is for you to do certain things – such as preparing food and drink, dressing and undressing, or getting around.

PIP has two parts: a daily living component and a mobility component. You might be able to claim one or both components.

8

Its ok you were having what is some times called a moment which happens to everybody