Hi. I am curious to know if anybody else started their Parkinson's journey with the same symptoms as me. My consultant seems uncertain and, worryingly, if it is not Parkinsons's can offer me nothing in the way of treatment.
About 2 years ago my handwriting started to be uncontrollable, and now I cannot write a legible envelope address - after about 4 words they get smaller & smaller until they become almost a straight line.
About 9 months ago I noticed I had a very slight hesitation (one or two seconds) when starting to move, just sometimes when tired late at night, This has deteriorated very rapidly since New Year to being every time i try to move and of many seconds duration. It is a nightmare when cooking or similar stop/start tasks. Often I just cannot get across the room in spite of trying to use tricks that used to work eg step backwards, change weight to other leg etc. But, when out in the open I can stride along and stairs are no problem, until have to stop or turn.
I have felt very stiff in back & neck during this time and fumbly and awkward & slow with utensils, shoe laces etc. I now move around like a 104 year old, not a fit & agile 64 year old, who until last year thought nothing of cycling 40 miles and was often in front of the group going uphill. I'm now too slow to go out with them at all.
I have no tremor. My consultant says I have very slight cogwheel rigidity in my wrists.
He offered me 3 options - wait & see (I have already done that for long enough), or have a DAT scan (cannot tell me how long the wait would be) or try meds. So that is what I am doing - started yesterday, Madopar 50/12.5mg, 2 tabs a day for a week then increase to 3 a day and see if symptoms improve. Can anyone suggest how soon I might feel an improvement or is this starting dosage too small to make any difference?
Sorry if this sounds all rather trivial to many of you but it has been devastating to my life. Any other ideas gratefully received.