Hi everyone, i have had 3 episodes of waking up in the early hours with severe lower back pain, unable to get comfortable, also seems to affect my left groin, its a very tight pain right across my lower back and hips, has anyone experienced this.
Thank you
Hi waynesmith,
Good to meet you.
You have me flummoxed.
I have never heard of this as a symptom of PD, but as you know everyone is different.
Have you checked your mattress?
It sounds as if that may be the problem, if it is “sagging”.
Hi - Yes, I have this PD symptom. I’ve had it for going on 4 years and have tried everything from acupuncture, osteopathy, chiropractor, massages, pain management, yoga lessons, physio and now trying what seems like every drug on the market. We’ve bought a new bed and chairs to try and help me. I have pain on and off day and night lasting for hours. I’ve just transferred to a different neurologist and hope he can help me.
Strange thing is, once I get up and go for a walk the back pain goes away?
This is another thing that R has, he mentioned it to the consultant last year but they also didn’t think it was Parkinson’s related. R says it feels that his bum and thighs feel numb and says it feels like he is sitting on rocks at times. Think we will mention it again next consultation (whenever that is 
) Rach
I wonder, as you say it goes away when you walk, if this is not related to perhaps a pinched nerve that gets caught between the vertebra.
I have a degeneration of the cartilages in my neck, C4,C5,C6, as a result of falling off horses, I rode most of my life. I must admit most of the falls were absolutely my fault by being stupid.
As a result I find the bones vertebra rub against each other causing pain in certain positions when I lie down.
That goes when I walk or stand up, not always but most of the time.
I have found that a Facit injection into the gap between the vertebra, which I have once a year.
Perhaps mention it to your GP.
Thanks, i will check with my GP
I get this on and off. It wakes me up and I can’t move without great pain. I put a handle thing at the side of the bed that lets me pull myself onto my side and get up. Then as you say, the pain goes with movement. I assume it is PD - can’t get a GP or neuro appointment round here. We have a new mattress recently and many nights I get no pain at all. Then I will have a few nights of excruciating pain, then it stops for no obvious reason. I’d be interested to know what your GP or consultant says.
I have been suffering the same thing for years, my specialist says it’s not to do with PD but the pain is worse when my meds not working properly. I also get the feeling that my legs have no blood supply and feel crushed and bad cramps always at night when meds are at there lowest. I finally got a CT scan which showed nothing significant. I have found rubbing in freeze gel helps, it would be nice to get to the bottom of it. No sleep and pain is not a good combination.
It’s important to see a doctor for proper diagnosis. Severe lower back pain and discomfort in the groin could indicate various issues, such as muscular strain, kidney problems, or a hernia. Medical evaluation is crucial.
Thank you
It seams I have to learn to lie with the pain. I have been told it is neuropathy and is a PD symptom.
Just odd that it goes as quickly has it comes
A while back, I started waking up with this gnarly pain in my lower back that sometimes shot down to my leg. Couldn’t get comfy no matter how I twisted and turned. It sucked.
What helped me might give you some ideas. First, I realized my mattress was more of an enemy than a friend - it was super old and didn’t support my back right. Swapping it for a firmer one that supported my spine better made a big difference. It wasn’t a quick fix, but over time, I noticed less of that awful pain.
Then, I found out about this stretch exercise called the “piriformis stretch.” Picture this: sitting on a chair and crossing one leg over the other knee, kinda like a gentleman’s cross, then gently leaning forward. It sounds simple, but it stretches out the muscles in your lower back and hip in such a relief-giving way. Doing it a couple of times a day, especially before hitting the bed, helped ease things a lot.
Plus I started to go to physio, at this Ottawa Physical Rehab Clinic in Ottawa, and Dr. Stoltz fixed my back in one month and forgot about such back pains.
I’m really interested in this exchange. I am six years into my diagnosis and all is going quite well with the exercise regime – PD warrior/other exercise class/tennis/eliptical trainer/fell walks. I do at least an hour a day and the progression has been fairly slow, I need medication but can do everything I want to. However, I have recently come across a problem that can be quite deibiltating and neither my GP nor my PD people seem to know what to do. It is an intermittent very sharp pain down the outside of my left leg and associated with it is pain in the lower back. It can be excruciatingly painful, makes me cry out loud and means I have difficulty walking. The lower back part is bad at night and can wake me up. It feels like the sciatic nerve but because it is not constant it apparently
doesnt count as sciatica. I never get it when playing tennis and sitting down gives some relief but it often occurs when I am tired or under pressure. Does anyone else have anything similar and if so are there any exercises or stretches which have helped? Normal pain killers have no impact.
