Hi everyone, i have had 3 episodes of waking up in the early hours with severe lower back pain, unable to get comfortable, also seems to affect my left groin, its a very tight pain right across my lower back and hips, has anyone experienced this.
Good to meet you.
You have me flummoxed.
I have never heard of this as a symptom of PD, but as you know everyone is different.
Have you checked your mattress?
It sounds as if that may be the problem, if it is “sagging”.
Hi - Yes, I have this PD symptom. I’ve had it for going on 4 years and have tried everything from acupuncture, osteopathy, chiropractor, massages, pain management, yoga lessons, physio and now trying what seems like every drug on the market. We’ve bought a new bed and chairs to try and help me. I have pain on and off day and night lasting for hours. I’ve just transferred to a different neurologist and hope he can help me.
Strange thing is, once I get up and go for a walk the back pain goes away?
This is another thing that R has, he mentioned it to the consultant last year but they also didn’t think it was Parkinson’s related. R says it feels that his bum and thighs feel numb and says it feels like he is sitting on rocks at times. Think we will mention it again next consultation (whenever that is ) Rach
I wonder, as you say it goes away when you walk, if this is not related to perhaps a pinched nerve that gets caught between the vertebra.
I have a degeneration of the cartilages in my neck, C4,C5,C6, as a result of falling off horses, I rode most of my life. I must admit most of the falls were absolutely my fault by being stupid.
As a result I find the bones vertebra rub against each other causing pain in certain positions when I lie down.
That goes when I walk or stand up, not always but most of the time.
I have found that a Facit injection into the gap between the vertebra, which I have once a year.
Perhaps mention it to your GP.
Thanks, i will check with my GP
I get this on and off. It wakes me up and I can’t move without great pain. I put a handle thing at the side of the bed that lets me pull myself onto my side and get up. Then as you say, the pain goes with movement. I assume it is PD - can’t get a GP or neuro appointment round here. We have a new mattress recently and many nights I get no pain at all. Then I will have a few nights of excruciating pain, then it stops for no obvious reason. I’d be interested to know what your GP or consultant says.
I have been suffering the same thing for years, my specialist says it’s not to do with PD but the pain is worse when my meds not working properly. I also get the feeling that my legs have no blood supply and feel crushed and bad cramps always at night when meds are at there lowest. I finally got a CT scan which showed nothing significant. I have found rubbing in freeze gel helps, it would be nice to get to the bottom of it. No sleep and pain is not a good combination.
It’s important to see a doctor for proper diagnosis. Severe lower back pain and discomfort in the groin could indicate various issues, such as muscular strain, kidney problems, or a hernia. Medical evaluation is crucial.
It seams I have to learn to lie with the pain. I have been told it is neuropathy and is a PD symptom.
Just odd that it goes as quickly has it comes