Hi Sharon, what a terrible experience you've had to go through. Sounds like you have a sympathetic and understanding GP which is definitely in your favour. I know you have a lot to take in and process at the moment, but if you can, make a note of the date you attended hospital and the name of the consultant or (locum consultant) you saw. When you feel ready a call to PALS (https://www.uclh.nhs.uk/PandV/Helpandsupport/PALS/Pages/Home.aspx) might be useful to discuss your concerns about this appointment because you can probably bet you're not the only one with concerns surrounding this consultant but not everybody will speak up.
PALS were incredibly helpful with me when I called them last Monday. As I thought, my appointment had been lost in the follow-up system which is why I've been waiting since last year for my appointment. With their involvement, I now have an appointment with a new Consultant (not a Locum this time) next week which I am more than happy with.
Hopefully they will be able to expedite your appointment so you can start the medication sooner. Keep us posted on your progress with them.