Does anyone know how to get on a clinical trial ? Last time i asked a consultant (i've seen 6 different ones in 3yrs !!) he told me my symptoms weren't "bad enough" - i'm physically fit (ran a marathon in May)just how "bad" do you need to be ??
Yes!
Look in the 'take part in our research' section under the 'research'section of this site. There is a list of studies and trials that may be recruiting. Different trials need people at different stages - some affected by PD some not. check the criteria for each trial - email the organiser and that is it......
EF
Look in the 'take part in our research' section under the 'research'section of this site. There is a list of studies and trials that may be recruiting. Different trials need people at different stages - some affected by PD some not. check the criteria for each trial - email the organiser and that is it......
EF
Hi helshubby,
I know it's an American site but try http://www.pdtrials.org/
At the very least it is full of very useful information (in preparing for a trial etc.)
It's actually easier to get into a trial if you are relatively "healthy". Trials have been known to be skewed towards patients with no co-morbidities and a lot (if not the vast majority) do not want patients taking PD meds.
Maybe, in your circumstance, a US trial cannot be ruled out?
Best wishes,
rico
I know it's an American site but try http://www.pdtrials.org/
At the very least it is full of very useful information (in preparing for a trial etc.)
It's actually easier to get into a trial if you are relatively "healthy". Trials have been known to be skewed towards patients with no co-morbidities and a lot (if not the vast majority) do not want patients taking PD meds.
Maybe, in your circumstance, a US trial cannot be ruled out?
Best wishes,
rico
And also try
http://www.clinicaltrials.gov/
just found it in my bookmarks
eg enter parkinson's uk in the search box
Best wishes,
rico
http://www.clinicaltrials.gov/
just found it in my bookmarks
eg enter parkinson's uk in the search box
Best wishes,
rico
Cogane is currently undergoing Stage 2 trials, with recruitment continuing to the end of November.
Primary entry qualifications, are that you were dxd less than 2 years ago, and that you are not on PD medications
Peter
Primary entry qualifications, are that you were dxd less than 2 years ago, and that you are not on PD medications
Peter
Thanks everyone for your help - i'll just have to keep looking i guess. Diagnosed in 2005 an have been on Requip since 2007 (Requip XL last 18months) so probably won't fit criteria ? Keep healthy !!