My father was diagnosed with Parkinson's in January 2013; he is 63 years old and lives with my mother. After he was diagnosed he was initiated on levodopa treatment but we quickly found that the medication exacerbated his symptoms, with his neurologist subsequently deciding to cease pharmacological treatment and explore other avenues. Since then he has been undergoing regular physiotherapy and attending various exercise classes which have had some positive effect. Nonetheless, his motor symptoms have continued to worsen and he is now confined to the house and requires assistance with a number of basic self-care tasks (dressing, eating etc).
While my mother is his primary care-giver, I've tried to make adjustments to my own situation so that I can provide more support. At the time of his diagnosis, I was a 18 months into a graduate position, but decided to leave and begin a PhD programme in November last year. I was hoping that being a student would afford me greater flexibility to spend time with my family (who live about five hours away from where I am currently based). However, the programme has been more difficult than I had thought and as a result I have actually found it more problematic to make it home to provide assistance. In recent months I've found myself becoming very down about the whole situation, although I appreciate this is nothing compared to what my dad and mum are going through.
What I'm having the most issue with is the nagging voice at the back of my head which keeps asking whether I should be doing more. I've tried to put myself in a position where I can help without sacrificing everything I have worked for in my career and personal life, but in reality it feels like my decisions up to this point have worsened things in all areas of my life. I'd really appreciate any advice or insight into what to do moving forwards.