A number of people with Parkinson’s in Hereford and District who have had DBS at Bristol, using Boston Scientific, have found that while it has stopped the tremor it has caused (or resulted in, at any rate) other problems including serious stiffening of the left arm. After 1 - 3 years, with much to-ing and fro-ing to Bristol to try to get it sorted out, these individuals are experiencing a severely limited and worse quality of life than before. As someone who was counting on having DBS in the future, I am very concerned and am beginning to despair for them as it seems nothing is going to sort this problem out. So we are sending out this message together.
If you have had DBS and experienced similar problems we would like to hear from you, especially if you can offer any ideas to help.