Since 2007 l have been treated for a rare parkinsons disease, Only to find out this month of June 2012, that l have C.B.D which is terminal, and have no medication to treat this disease, to top it, dont know how long iv got to live. Iv looked the disease up on the N.H.S. site not nice reading, the consultant in the hospital where l was having teasts done, said its very difficult to detect, as the problems ie, movements etc are the same as Parkinsons, Im still taking parkinsons medication, with a trail drug hoping it will slow down the degeneration of my brain. It is a rapid diease, a nasty way to go. My life now is day to day not knowing when it will take my brain away from me. Im 55 year of age bad enough to find out having parkinsons, but this, is scarey. When was the last time any new parkinsons or neurology drug has been out? we put so much in for test trails, etc,
Is there anyone else got this disease? or knew or know anyone who had it?
thanks for reading