My father has Parkinsons. He and mum have been divorced for 10 years but she was still going round to his house to care for him. It recently reached the point where she cant cope (and his house was dangerous - steep stairs/bath only) and he moved into a care home. But despite paying 1100 pounds a week they said he was too demanding and didnt want to keep him. He has since tried another place which had more nursing care and they said the same thing. We are at a loss about what to do.
He doesnt need nursing care most of the time but when he gets frozen (which is alot) he is incredibly demanding, He wants someone to stand him up and sit him down repeatedly for about 2-3 hours, pass him water, help him go to the loo, fetch things for him, lift his head etc etc etc. He is very OCD about it and no care staff have that kind of time. Plus they refused to lift his head citing health and safety so he thinks he will die.
He really freaks out in his off times. He sincerely believes he will die. He thinks he will suffocate when his head droops and he cant lift it (he makes mum cut the neck open on all his t-shirts). He accuses the staff of neglect (and he might have been right in one of the places) and in a panic phones anyone whos number he has begging for help (e.g. me even though I live abroad, his accountant etc). Poor mum (who works full time and is exhausted) gets about 20 calls a day from him saying hes going to die and she has to come now, or 'take care of the kids for me', or else just heavy breathing and grunting. Shes an emotional wreck.
Basically he wants someone to sit with him 24/7 and be at his beck and call but its just not feasible - no one has that time plus he freezes completely and is very heavy so needs professional carers, he couldn't live at home anymore even if it were an option. Does anyone have any ideas? Thanks.