I’m looking for anyone who has experienced being a carer for someone with PD whilst also caring for young children? We have 3 children 5 and under and I’m doing everything. I’ve tried Parkinson’s nurse, GP, social services and Parkinson’s helpline but I’ve only had links to websites given to me, I need some practical help!
Are there any tips or other ideas for me to try? Without spending a fortune too…
Hiya, bloody hell! That must take some juggling… you’ll be frazzled!
Has a social worker done a formal assessment of the needs of the person you care for? Sometimes called a Care Act Assessment?
Simon
Thanks, no they haven’t. They’ve called my husband once when I submitted it for him (he missed it) and then they didn’t get back to me on my carer one. I tried chasing it up but apparently because nothing has changed I can’t contact them again!
Ok, that isn’t uncommon because they are frazzled too… But that isn’t your problem.
As soon as you have time call adult social care. Tell them that informal care is at risk of failing because you also have preschool children to care for, You need a care act assessment and a carers assessment and you need them now. Use those words because both of those are statutory duties which they can’t refuse,
Do you want me to give you my number and we can talk it through beforehand?
Simon
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That’s really helpful thank you, I’ll do that tomorrow morning and if I don’t get anywhere I’ll post back here.
I think this is the furthest I’ve got either anything for the last couple of months so I really appreciate it, thank you!
Good luck, You are doing an amazing job and you deserve the support that you are entitled to and, as does the person you care for.
Be assertive… As we say up here “Shy bairns get nowt!”
Caring for someone with Parkinson’s while also looking after young children is an immense challenge, and it’s completely understandable that you’re seeking practical help beyond websites. Here are some ideas and tips that may support you without a big expense:
- Build a support network: Reach out to local Parkinson’s UK volunteer-led groups or carer support groups where you can share experiences, swap tips, and sometimes arrange informal carer swaps or help with childcare for short periods. Many areas have groups that meet regularly and offer social and emotional support.
- Local council and social services: Request a Carer’s Assessment from your local authority. This is your right and can identify practical support options such as short breaks, respite care, or home help services which might be available at low or no cost based on need.
- Practical home adjustments: Small changes to make the home safer and easier to manage (clear pathways, grab rails, easy-to-use assistive devices) can reduce your workload and stress. An occupational therapist connected to the Parkinson’s team can offer advice and sometimes equipment loans.
- Routine and involvement: Where possible, develop daily routines that include manageable ways children can be involved in caregiving suited to their age — this can help them feel part of family life and reduce your load slightly.
- Respite and breaks: Explore community resources such as volunteers, befriending services, or respite care providers that offer short-term relief. Parkinson’s UK and other charities sometimes offer grants or practical support funding for carers.
- Use technology: Simple tools like timers for medication, meal planning apps, or voice assistants can streamline tasks.
- Ask for help: Don’t hesitate to involve friends, family, or neighbors in small ways to give you brief breaks or assist with childcare or errands.
You’re doing an incredible job managing so much. Parkinson’s UK helpline and local groups can help you locate services nearby and support tailored to your situation.
If you want, I can help you find specific local groups or services in your area. Please take care of yourself—you are important too.
Thank you Rhea. I have been brave and asked mum in law to watch the children today while I do some jobs. I will keep reading through your points and make sure I’m getting every help I can. Thanks for taking the time to list it all out
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No worries! Glad to have helped
Hello
Am I understanding your post correctly - you have 3 young children plus you are a carer to someone who has Parkinson’s Disease ? Or is it you yourself have Parkinson’s Disease and 3 children and are looking for a carer ? I wasn’t sure who need’s caring for ?
3 young children is a full time job alone.
The Parkinsons UK website has a great helpline - give them a call and hopefully they can put you in contact with someone to help you.
Best Wishes Jane
Thanks plus1. I have 3 young children and it’s my husband who has PD. We both need practical help really! I have phoned the helpline and they directed me to some links but I wasn’t able to get anything from there as yet. I’m sure they’d help again if I tried phoning and letting them know.