This is my first post here, but beginning to feel quite overwhelmed at home. I’m 29 years old and a full-time carer for my husband who has YOPD and is now 52 years old.
He was diagnosed nearly 10 years ago and so is fairly advanced with the illness. I’ve known him for six years now so I’ve never known him pre-Parkinson’s, however, I’m beginning to get really worried about the onset of behavioural changes.
These aren’t compulsive behaviours but seem to be complete changes in personality. Some days he’ll be really lovely and then others I feel like I’m living with a stranger. He’ll be nasty, controlling, irrational, insulting… To the point where I just want to leave the house, but of course I can’t because there is no-one else here to look after him if he gets stuck. I don’t know if this is typical behaviour of someone with Parkinson’s, whether it’s a drug side effect or the illness itself causing the brain to degenerate. It scares me because not only do I now have the general insecurity and worry of how he’s going to be like physically, but now I don’t know how he’s even going to behave towards me. He can’t see it in himself and often blames me and says I’m being irrational.
Has anyone else experienced this?