Best wishes to you at this very difficult time.
When you are ready you may like to visit the UK PSP site.
This is information from their forum mentioned above.
"The PSP Association offers advice, information, practical and emotional support to people living with PSP and CBD, while at the same time supporting research into treatments and ultimately a cure for these conditions.
Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. We offer support through our Helpline, Information and Advisory via telephone or email, our network of Local Groups and our Specialist Care Advisers, who work to ensure that people affected by PSP and CBD have access to good local support. We also offer a wide range of resources and publications.
Our helpline and email service is completely confidential and is open Monday to Friday 9.00am to 5.00pm"