I am new to the forum and it has taken me a while (as I am a bit of a techno numpty) to work out how to do this.
I am a 70 year old lady who has recently been diagnosed, but reading some of your story's I realise I have probably had it for sometime before the tremors and impossible to read writing appeared.
Reading what you have to say has been a breath of fresh air as I was wondering how I could have a good day and the next daybe completely polaxed.
looking back it probably started a couple of years ago when I suddenly became very withdrawn for no apparent reason,I went from doing lots of voluntary work locally to not wanting to go out and everything became an effort, I had spent many years running a support group for people with auto immune conditions and attending meetings at my local hospital as a patient representative, and one by one I have backed away from them all.
The medication I was given I couldn't tolerate and have to wait 4 weeks before they try something different I am having problems with extreme fatigue and lack of general strength I have lost my sense of taste and some days have tremors all over but thank fully they don't last long but just leave me feeling exhausted.
This has been the first time after reading your story's that I feel much more positive thank you all so much.