T, I'm still compettive 12 years post diagnosis and nearlly 61 so carry on and set your sights high BUT I don't race beyond 10K. If you are doing the miles needed fo a marathon being lopsided is going to make you prone to injuries I would guess - maybe get dadvice from a physio BEFORE that happens!
I have been given one of those excercise prescriptions, so I thought I might add in some circuit training. I am impressed by Girlred's and Ms Overalls other physical activity - maybe a variety of exercise is the way to go.
I have madopar to use as "a rescue remedy" but like Zatopec not sure it is doing a lot. If I am racing I take some sinimet 30 min - 1 hour before. However I am now seeing a specialist nurse and she says regular times for medication is important so maybe I have not been doing the right thing there. Last Sunday I did a 5 miles race and tried dipersible madopar as well. I did the first 3 miles in 21:10 , then it all rather fell apart as the sympytpoms kicked in. I kept swerving to the right like a wonky supemarket trolley and grazed myself on a wall but with a bit of sensible walking finished just inside 40 minutes, ie from 7 minute miles to 9 minute miles! I clearly looked even rougher than I felt though and I was surrounded by concerned people at he finish, but once they realised it was not a emergency problem they relaxed. I have considered putting DPM on my club vest though - "Don't patronise me"!
I have begun again doing Nordic Walking around my local park. Some of the Age UK Nordic teachers run using their nordic poles. Have been reading some interesting research about the benefits of Parky bods doing nordic walking. This is something else you might want to explore?
I am new to the forum. I was diagnosed earlier this year and up until a couple of years ago when I started to feel tired (!) I ran regularly. I am due to join a running group tonight with the goal of running 5k in 10 weeks - gradual build-up. Any advice or concerns would be much appreciated.
Get a training partner or join a club. Most clubs will split training according to your speed or will allocate you a mentor. FInd out your local clubs and ask what they do but even the highly competitive clubs will have slower members. Just off the top of my head that was the first thing I thought of
Never liked running when i was younger - too 'busty' - but lost loads of weight when i was diagnosed in feb 2013 and since then started a daily exercise programme including running. Got to a max of 10 km, very slow, but it helped my posture. Have stopped running recently due to work and family pressures, find it very hard to cope with the cold. Any advice? Any runners in brusels area?
Hi all, it’s been a while but I’m back , stronger than ever. I do Parkrun and a club run on Mondays , Tai Chi on Wednesday and Thursday with yoga on Fridays- I also normally go for a run on Wednesday and Friday morning with the occasional long run on Sunday
Am i overdoing it - We’ll, I would argue not.
I’ve been doing RED January (Run Every Day)and I’ve never felt better ! I was diagnosed in 2005 , forced to retire in 2011 but went back to work in 2016
Cure ? I certainly won’t wait !
Interesting thread. I was diagnosed about 20 months ago at the age of 66. I have been running on and off since school. About 9 years ago I gave up as I had a bony spur on my right heal. My wife decided to do a Race for Life and “suggested” I might lke to help her train, so I started again and, prompted by the pain involved, decided to see the quack. Long story short I had an op to sort the spur and resumed running.
My normal range is 5-6 km, which I used to do at 12+ kph ave. Since diagnosis my average has fallen to below 10 kph and for the last couple of months have started to struggle for breath. this has coincided with the production of phlegm in the throat that I need to cough clear regularly. I am thinking that the two may be linked, breath shortage and phlegm production.
Has anyone had similar or can offer any advice?
Pre-lockdown I was also doing a session each of yoga, movement to music, PD Warriers and choir. Since lockdown I have lost the choir and Warriers, but do two sessions each of yoga and M to M per week online. Whether the exercise is delaying progression I don’t know, but I cerrtainly feel better for it, and my tremors don’t seem any worse than when first diagnosed.
Having spoken to the Parkies Nurse yesterday I am going to make a Dr’s appointment to get checked.
Hi , I’m a bit younger than you but ,interestingly i think anyway , since being diagnosed 15yrs ago , my phlegm production has escalated. I am still running but every time i start running , it starts . I have to clear my throat and blow my nose constantly. I am sure it is something to do with PD - my running partner , who is a nurse , thinks its something related to the muscle tone in your diaphragm/ Bronchus/ lungs somehow doesnt clear it effectively enough due to poor muscle control (?) this makes sense , i just need to find a way of making it stop …any further ideas ?
I’m sure many others on the forum will relate to the issues that you’ve disclosed. I just wanted to make you aware that we have exercise for the lungs that improve breathing and general lung health on the Parkinson’s UK magazine. You may find this information helpful so feel free to read the article when you can here: https://www.parkinsons.org.uk/information-and-support/your-magazine/exercise-lungs
Thanks Reah , I think at times my ribcage dies feel a bit tight but I don’t have any breathing problems. I had pneumonia a few years ago now but when I was last tested for Peak Flow I broke the machine they used , it didn’t go high enough!!
I’m really happy to hear that you recovered from pneumonia and you clearly don’t have any breathing problems if you broke the PF machine! If that isn’t a clear indication I don’t know what is.
