Involvement opportunity: help shape our information on Parkinson’s and preparing for the end of life
We’re currently reviewing our information on Parkinson’s and preparing for the end of life.
We need your help to make sure our information is accurate and relevant for people affected by Parkinson’s. We’re looking for up to 8 people to share their views and experiences.
Who can take part
We’re looking to speak with people who are:
- living with Parkinson’s
- are a family member, friend or carer of someone with Parkinson’s
- have had a family member or friend with Parkinson’s who has sadly died in the last 10 years.
What information are we looking for?
There are a wide range of topics that this information could cover. We need your views on which are the most important.
This will include:
- the title for the new booklet and webpage
- potential medical, emotional and practical topics we could include
- whether we should include real-life stories in the information, and who could feature
- anything else we should cover.