Sorry, this may be a long post…
Whilst chasing a prescription from my neurologist, I was told by his secretary that being newly diagnosed with Parkinson’s that it is important that i stay on the new medication… WHAT??? My neuro hadn’t mentioned this when i saw him the previous week.
My story starts March 2017, I was admitted to hospital on March 1st with suspected stroke… I had lost feeling in my left side head to toe, had a CT scan which came back clear and I stayed in for a few days until I was diagnosed with Hempilegic Migraines. These symptoms never went so i returned to my GP, who sent me to a neurologist who suspected MS. I was given an MRI of head neck and spine. All clear.
I returned to my neurologist who changed my medication to half sinemet and duloxetine.
I am also on amitriptyline from my GP for help with pain in my body.
I have stopped gabapentin and pregablin as i dont feel they were helping.
My symptoms are:-
numbness down left side, tight calf muscles that occasionally lead to cramping, extreme tiredness, pins and needles in arms, hands, legs and feet, sharp pin pain, blurred vision, loss of balance and heavy legs.
Do any of you suffer from these?? I dont feel like i fit the Parkinson’s symptoms??
I feel so lost and confused and am waiting for another neuro apt. Not due for another 3 months.
A lovely lady on here said i should phone the PD nurse but i feel like I would be stopping someone in more need getting through.
Thank you for reading, sorry for the long post.