Hi
I was initially diagnosed with parkinsons plus syndrome but have recently had the diagnosis changed to a gene variant form of parkinsons after visiting the national institute of neurology in london . I have also had the tests for dbs which I am a candidate for . I wondered if anyone else out there has a genetic form of parkinsons and whether you could let me know what medication you are taking . I am supposed to take stalevo three times a day but it is having negative effect on my mood and I end up just taking the madopar dispersible tablets my pd nurse prescribed . I also take citalopram and clonazepam at nighttime . Not sure how to proceed and would be grateful for any comments . I am also concerned that i turned down the dbs for now as i feel it is too early for me and find the thought of the operation quite frightening . Think my neuro is going to be angry i didnt go for it . Has anyone else turned down the dbs and is it personal choice ? Would me so nice to hear from someone with the same situation with medication or dbs . !!! Thanks