So, hwp, still in hospital, and now appears to have lost control of bladder continence day and night. Pruor to admission there was just a small night time issue, infections were ruled out. Big question is, is this a deterioration in condition, or a side effect of drugs started for rem sleep disorder. Staff have no idea. Anyone had experiences of this
Hi Jandc,
We’re very sorry to hear that your husband is in hospital and is experiencing continence issues.
People with Parkinson’s are more likely to have bowel and bladder problems than people who don’t have the condition. But there are ways to manage the symptoms such as medication, diet, bladder training or a catheter. You can find out more on our website here: Bladder and bowel problems | Parkinson's UK
Our helpline is also available if you’d like to chat to one of our trained advisors or a Parkinson’s nurse: 0808 800 0303.
We hope that others will be able to share their experiences with you, and that your husband is able to access the support that he deserves.
Sending all our love,
The Parkinson’s UK Moderation Team
Have they suggest a different medication to try to see if that is the problem.
Hi jandc,
Correlation suggests it could be ?
To test if it is remove drug if doctors agree just to see what happens.
The staff not sure only one way to find out !
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Yes thanks corinne, i have the bladder and bowel leaflet and have been reading it closely. The consultant reviews him each monday so we will bring up our concerns
Hi rach1, its all a bit complicated because its major cognitive changes and hallucinations and rem sleep issues that caused the admission to hospital. I just feel the continence problem is a side issue for the staff, who don’t seem that bothered by that.
Hi Jandc. I do understand my husband suffers rem hallucinations/ confusion its not good and I find it difficult. If possible try and make sure your husbands Parky meds are on time while in hospital i have just returned from hospital after having my second bowel operation and inbetween having to return twice with complications. I found the hospital staff are brilliant but just so busy.
Well the hospital are exemplary with medication timings, but the meals times are set, and clash with med times now. We have asked them to adjust the med times accordingly, but they wont do that unless the PD nurses tell them, Pd nurses just told them no changes to current prescription. We didnt ask for dose changes, just timings round meals. Im so fed up with it all right now, its complex, a huge variety of things are affecting him, too much for this particular ward to comprehend.
Hi Jandc, I really feel for you having had a taste of it. Try to be positive and don’t loose yourself in it all.
Try and get some me time to help clear your head…even a short walk round the hospital.
Jandc have you spoken to the Parkinsons uk nurses. They are very helpful, I phoned them a couple of times.
Oh yes, spoke to helpline at the start of this recent down turn, always helpful, cant fault pd /uk. Im fine now, just had a little blip there. Its frustrating for those who live with PD, but equally so for partners. Tomorrow is consultant visit day, hoping for clearer vision of where we go next.
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Hello JandC, sorry to hear husband is in hospital, never a good time. Sounds from what you’re saying he has encountered a setback for reasons unknown.
Having experienced my husband with Parkinsons (diagnosed 13 years ago) being hospitalised a number of times and the impact it has I understand it’s distressing.
You state infection has been ruled out does this include a urine check ? I ask because at my husband’s last hospital admission his hallucinations amplified to the point of delusion. He phoned the police asking for help saying he’d been abducted. Despite my asking numerous times, had they checked for a urine infection ? the reply I received was they no longer routinely ‘dip’ stick urine for over 65s because likely all will show bacteria presence. However I persevered snd after 2 days they sent a urine sample to labs which showed a serious infection. Once the appropriate antibiotics were given my husband’s delusions stopped. So be vigilant. Another hospital stay for my husband following an orthopaedic operation they gave him morphine which really did not interact well with his Parkinson’s medications causing severe hallucinations. Once the morphine was stopped he reverted to his normal.
Similarly my husband had a period of maybe 18 months when he had bladder incontinence mostly at night, but this suddenly stopped without any medication change, we’ve been unable to figure out why. Such is the joy of Parkinson’s and how different it is for each person affected.
I hope things settle again for your husband and once back home you can achieve a routine that works well for you both. Best Wishes Jane
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