My son Stuart was diagnosed 7 years ago when he was 42 years. He stayed with his girlfriend then. On the day he was diagnosed she told him that as a nurse she had seen the worst Parkinson's can be and that she could not cope with that and that they would need to split up and forget their marriage plans. She then told him in horrific detail of what would happen to him. She was persuaded not to split up but went back and forth saying split/don't split over 2 years when she opted for split, but still be a couple, but living apart.
Heartbroken. he moved into a house on his own. His condition deteriorated fast. I am his 70 yr old mother living 2 miles from him. He had to give up his car, licence, golf, fencing but was able to work from home 4 days a week. The girlfriend continued to blow hot and cold. She spoke of PD continually. He was saying to her "I am NOT just PD. I am me as well !" In the end he refused to let her mention PD as all comments were SO negative.After another 3 years he ended the relationship as she clearly wanted out and he was falling out of love then.
He had very bad symptoms, falling, tripping, hands clawing, insomnia etc.I was running over at short notice day and night. At one point a PD nurse gave him double the doze he should have had which caused more problems and took 4 months to get over.
All through this he had depression and stress and felt suicidal.His bosses were great though, but his long absences and regular inability to work at no notice must have been hell for them. Fortunately he is good at his job and valued.This led to financial problems but I was able to help there.
As the stress and depression faded and he was no longer emotionally attached to his ex-girlfriend, he became more stable health wise. I am sure all the stress he went through PLUS her dire warning were in part responsible for his fast decline. We are a small family. Just me locally , his sister is 300 miles North and brother in Australia, BUT we are all very positive people and have had to drag him out of a negative thinking mode he had picked up.
At the beginning of the year he got a rescue cat Riley, then 9 months. They adore each other and as the house is in the countryside, he has got rid of all the mice that had moved in and damaged wiring and pipes.A great wee character with no bad habits.
My grandchildren came over from OZ recently and Scott 11 years really hit it off with Stuart. They both have the same sense of humour. They are now playing computer games from different continents.
Life has improved now and he had not been off work for 4 months. He copes well now with work stress. He goes out with mates more.He belongs to CAMRA...the real ale society and they go were the beer is best !!
I have redecorated his house. It looks great. We went on holiday to Harrogate and Gran Canaria.
I belong to the local carer's group. Lovely support. Got a good GP too.
He can have bad days and sleeplessness is an ongoing problem, but his walking has really improved, I have been on the antidepressant Citalopram for years and it really helps.
Keeping him "UP" is the main aim and that keeps me up too. Sorry I have gone on a bit but I just wanted to say that life can get better and focusing on the positive is vital.Aim to build your life up, Both of you.Even small things all add up in boosting your moral.