Hi, I haven't been on here since Mum went into a home nearly 18 months ago. She is 83 now with Parkinsons and Lewy Body D and used to live with me before I felt I couldn't cope with her at home anymore. Still feel dreadful that she moved out. She is in a nursing home which was recommended by her GP. When she moved it was all a bit of a rush and I knew it was quite expensive but was so glad to find a bed that went ahead. She found the move so traumatic it took about 6 months for her to settle. She is self funding (sold her house a few years ago)and running out of money. I spent ages looking into it all at the time but I now realise that I should have found her somewhere cheaper because if the local authority agree to paying for her care (which I worry they might not due to issues too complex to go into here), myself and my brothers will still be liable for about £300 a week top up which we cannot afford.
I am now about to start looking at other places with a view to moving her. It is a nightmare all over again.
I have been looking at the local authority website and there seems to be a lot more advice about costs, etc than there used to be even in 2011 when she moved. The news is not good. There is even some kind of sliding scale tariff that she will have to pay weekly out of the remains of her savings. Also I hadn't taken on board that she won't get Attendance Allowance any more if LA are paying for her care.
I think my brothers are going to be furious with me for not finding somewhere cheaper as they t rusted me to sort this out.
Not expecting any answers. Just wanted to share this cautionary tale.
There is such a need for impartial advice. The social worker who saw mum when she lived with me was hopeless with his advice as he didn't really want to know because she had savings above the threshold.
I feel so angry that she has had to pay out all here savings on an unnecessarily expensive home and it is my fault.
The great thing about this forum is that it is somewhere to vent!