Hello to all of the Parkinsons community
I have been watching the London Marathon today, I have always loved the inspirational stories and great examples of courage of many of the runners.
I found myself today feeling very emotional and reflecting on my own life and where I am today.
I wa diagnosed 3 years ago this month! As we all are on our own personal journey, we are individuals but we have this in common. I thought I had accepted my illness, but at times it has brought me to real distress and a loss of the sparkle and vivacious spirit that makes me who I am.
I love to dance and that has always made me feel alive, I dont dance regularly, and when I last went out i found it challenging but was able to get lost in the sheer enjoyment and passion that I have. There were moments to feeling a little sad as I found my balance and stamina had changed.
In addition to my dancing, I really want to get cycling. I do love to ride a bike, but have never really done very much of that since my youth, except a short period a few years ago when living in Sussex and i clocked up a few miles in a single week.
I am here in Dorset, and I am looking for anyone who has Parkinsons Disease or who cycles regularly and is happy to become a mentor for me. I haven't got my bicycle and need to buy a second-hand bike.
I am fortunate to be living on the cliff top near Bournemouth and that gives me access to the wonderful promenade which gives cyclists several miles of path, only unavailable during July and August in the day time.
I have been through a tough few years since my diagnosis and they are not even related to coping with PD. The London Marathon and its personal stories have moved me and I recognise so many with great burdens. I know I want to take control of my life and learn to manage what I can.
The last week I have been having pain in my left leg on walking, at the moment my PD nurse feels it isn't related to PD and so my GP is looking into things. I have felt distressed, I am not ready to give up on life and wish to be of help/inspiration to others. I know I have much to give.
I have to get my game together, I do not work currently and have flexibility as to making plans for cycling with others. I make friends easily, so no concerns there.
Please please, get in touch with me if you can help or give me encouragement.
Hugs and love to all my PD friends/community out there!