Sorry about that, I went into NTGH last Monday to begin testing, I had been so Ill in the previous few days hence the lack of communication, and was looking forward to the tests with view to Improvement . Monday nothing much happened , paperwork and the usual hiccups. Tuesday tubes inserted up my nose to transport the Levadopa to my small intestine,this produced a very unpleasant partial shutdown with all the negatives it creates, I buckled and told everyone that would listen I had changed my mind and would not go through with it, the OP that is.
my mentor was very calm and explained all the consequences of my actions but also explained that it was entirely my choice and could walk away from the whole process any time. I was in no mans land, a very tiny spark in my thick skull still burned ,but my enthusiasm was gone I wanted to run and hide.
Then later that day my consultant popped her head round the door and told me in
terms which were straight to the point that If I lost this opportunity it would be unlikely the chance for a better quality of life would present itself any time soon, I had calmed down by then and thankfully Mr Sensible reasserted himself and
well to cut a long story, I am at home now ,returning to the fray on Sunday, the
process will be carried out on Monday D DAYMK2 this will install Duodopa , perhaps I should mention the DDPump is fitted and working via my nose and is producing amazing results I have no shutdowns I can walk talk eat think and do all
sorts of things previously denied to me or taken away
I have to be cautious obviously and I know it wont cure PD but at least I have put old BLACKHEART under control, and long may it last. I will send progress reports to this forum each day for the next week or two enabling a more informative picture
but so far so extremely good. Before I close, I wont mention any names as this is not correct protocol , however, to a very special lady from Birmingham, to all my
truly Excellent friends for that's what they are based in Jubilee NTGH who have
stuck by me despite my selfish behavior ,for which I sincerely apologise and to all the staff on Ward3 NTGH who cared for me if you read this ,Thankyou you have
shown a kindness to me that will never be forgotten.